The Joy of Finding My Four-Legged SupportLife has its moments – some challenging, some joyful. As a full-time electric wheelchair user with limited arm mobility due to spinal muscular atrophy, I've experienced my fair share of... By Megan DeJarnett2 min readBookmark for later
If I Knew Then What I Know NowWhen I was around 10, I was going through a lot of drama with my personal nurses. So now, I want to put a positive (but also realistic) spin on... By Kellie Cusack3 min readBookmark for later
How Alexa Became One of My Disability Must-HavesI was talking to my Public Partnerships consultant a few weeks ago (PP is a program where I live where someone you love can get paid to help take care... By Kellie Cusack2 min readBookmark for later
The Joy of Finding My Four-Legged SupportLife has its moments – some challenging, some joyful. As a full-time electric wheelchair user with limited arm mobility due to spinal muscular atrophy, I've experienced my fair share of... By Megan DeJarnett2 min readBookmark for later
If I Knew Then What I Know NowWhen I was around 10, I was going through a lot of drama with my personal nurses. So now, I want to put a positive (but also realistic) spin on... By Kellie Cusack3 min readBookmark for later
How Alexa Became One of My Disability Must-HavesI was talking to my Public Partnerships consultant a few weeks ago (PP is a program where I live where someone you love can get paid to help take care... By Kellie Cusack2 min readBookmark for later
The Joy of Finding My Four-Legged SupportLife has its moments – some challenging, some joyful. As a full-time electric wheelchair user with limited arm mobility due to spinal muscular atrophy, I've experienced my fair share of... By Megan DeJarnett2 min readBookmark for later
If I Knew Then What I Know NowWhen I was around 10, I was going through a lot of drama with my personal nurses. So now, I want to put a positive (but also realistic) spin on... By Kellie Cusack3 min readBookmark for later
How Alexa Became One of My Disability Must-HavesI was talking to my Public Partnerships consultant a few weeks ago (PP is a program where I live where someone you love can get paid to help take care... By Kellie Cusack2 min readBookmark for later
My Ewok CompanionIn the vast and colorful world of dog adoption, there are countless tales of furry companions who found their forever homes. These stories often involve the rescue of dogs from... By Allie Williams4 min readBookmark for laterReactions 0 reactions Comments0 comments
Grieving Over a Spoon and ForkWho would've known that a seemingly simple pair of utensils could carry such emotional weight? The other night, my sister invited us over to her house for dinner. This wasn't... By Megan DeJarnett3 min readBookmark for laterReactions 0 reactions Comments0 comments
Welcome to SpinalMuscularAtrophy.net StoriesAt SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...Bookmark for laterReactions 0 reactions Comments0 comments
Will you take our In America survey and help others understand the true impact of SMA?To better understand the patient experience and realities of SMA, we are fielding our SMA In America survey. By taking this anonymous survey, you can help everyone better understand the...Bookmark for laterReactions 0 reactions Comments0 replies