Forums

Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

Managing Depression

I want to understand how personal with SMA cope with mental depression when you lose the ability to do certain things which...

You are more than someone with SMA. Who are you?

SMA is an all-consuming condition and affects so much of our lives. Other than SMA, how do you describe yourself? What is...

Commode accessories

Since I have sma I cannot sit down and get up on any chair that is lower than 24 inches. I have...

Vacations & Travel with SMA

A community member recently asked to learn more about how to air travel with SMA. Have you done lots of traveling before...

Featured

Treatment Journey Update

Where are you on your treatment journey? Have you begun treatment or are you weighing your options? Do you have experience switching...

Severe neck weakness

I'm 39 years old and live in Portugal. Was diagnosed with SMA type2 in London (Hammersmith Hospital) around my early teenager years...

SMA Specialist Discussion Board: What Do You Look For?

Feel free to share your experience with SMA specialists, and what you look for when searching for the right doctor. ...

Are You in an Interabled Relationship?

What is your experience like being in an interabled relationship? If you need inspiration, read Suzanne's perspective: https://spinalmuscularatrophy.net/living/interabled-relationships Share below!...

How do you find balance?

When you're ill for a long time and can't stick to the things you love doing, how do you manage your mental...

SMA Awareness Month Discussion Board: What do you wish others knew about SMA?

If there was one thing you could tell the world about SMA, what would it be?...

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