FeaturedWill you take our In America survey and help others understand the true impact of SMA?To better understand the patient experience and realities of SMA, we are fielding our SMA In America survey. By taking this anonymous survey, you can help everyone better understand the...Reactions 0 reactions Comments0 repliesAwareness
SMA 3 with handweakness Hello My son started developing a weak grip about 16 months ago . He said when he was lifting weights at rowing training he couldn’t get a grip and his...Reactions 0 reactions Comments5 replies
Acts of KindnessHave you experienced radical kindness or inclusivity recently? Let's share positive stories with our community!...Reactions 0 reactions Comments0 replies
What's in your winter essentials tool kit?Have you found a product(s) that helps keep you extra warm during the winter months? Share with our community!...Reactions 0 reactions Comments1 repliesTips & Advice
Pros and Cons of Power ChairsAre you new to using a power chair, or have you used one for a while? What are some things you love and some things you dislike about using a...Reactions 0 reactions Comments0 repliesAssistive Equipment
Diagnosis Discussion BoardWhen were you, or your loved one diagnosed with spinal muscular atrophy? What was the treatment journey like? Were doctors skeptical of another disease, or did they know it was...Reactions 0 reactions Comments0 replies
Adaptive Sports & HobbiesWhat are some of your favorite adaptive sports or hobbies? How have you really made them something you love and enjoy? Share with our community....Reactions 0 reactions Comments0 replies
Finding Kindness Do you find that others are easily willing to help you after they notice that you're in a wheelchair? If you've experienced the opposite, how have you handled situations where...Reactions 0 reactions Comments0 repliesAwareness
How do you find balance?When you're ill for a long time and can't stick to the things you love doing, how do you manage your mental health? Do you find it difficult to balance...Reactions 0 reactions Comments1 replies
Vacations & Travel with SMAA community member recently asked to learn more about how to air travel with SMA. Have you done lots of traveling before as someone with SMA? Does a loved one...Reactions 0 reactions Comments8 replies