Severe neck weakness ...It is affecting my quality of life hugely, so I was wondering if...reactions7repliesComplicationsSurgerySymptoms
My Child Has SMA...Doctors who specialize in palliative care can help you make decisions and goals related to quality of...
Challenges of SMA and Its Progression...Additionally, early intervention, medical treatments, and comprehensive care can improve outcomes and enhance the overall quality of life reactions1comment
Sibling Love...This is truly sibling love and a necessary blessing for Mike’s quality of life....reactionscomments
Treatment Expectations for Adults with SMA...They also need access to mental health services and palliative care to maintain their quality of life....
Fears of the BiPAP...But ultimately, it has allowed me to take better care of my lungs and improve my...reactions1comment
A Conversation Between Myself and Heaven...So, is this the quality of life you wish for your daughter, Marc?...reactions1comment
Navigating Kidney Health with Spinal Muscular Atrophy...By doing so, we not only manage SMA more effectively but also improve our overall quality...reactionscomments
Type 1 Werdnig-Hoffmann...Treatment for type 1 SMA usually involves respiratory support to improve quality of life....
Preparing Emotionally with a Child with Spinal Muscular Atrophy...What kind of quality of life did she now have, being bedbound? Is this fair reactionscomments
Children and Spinal Muscular Atrophy...Coping with the impact of SMA is important to maintain mental health and quality of life....
SMA Treatment Advancements...My treatment center has monitored a number of measurements, including Quality of Life scores and motor...reactionscomments
Nutrition and Spinal Muscular Atrophy...The goal is to maintain a diet that reduces illness while maximizing growth and quality of
Complication Of Spinal Muscular Atrophy: Pain...Increased pain worsens quality of life, mood, mobility, and social functioning in children with SMA....
My Journey With Evrysdi...Finally, my overall quality of life feels different in a good way. As I...reactionscomments
Why Are Car Repairs So Expensive?...It is important to note that the $2,000 limit can significantly impede one's quality of life....reactions1comment
Why Advocacy Is Important to the SMA Community...This has the potential to lead to more funding for research, better support services, and improved quality reactionscomments
What Is a Tracheostomy?...Doctors can discuss options based on the child’s clinical status, prognosis, and quality of life....
My Battle With Chronic Pain and SMA...Opioids, while not a one-size-fits-all solution, have been my lifeline, significantly enhancing my quality reactions1comment
