Switching from Spinraza to Risdiplam...I'd hate to start then have to switch back and redo loading doses of Spinraza again. Has anyone here...reactions4replies
My Chart & other electronic communications...Does it make things easier on you or do you prefer talking to your doctor?...reactionsreplies
Is this SMA?...Besides having severe multilevel spinal stenosis, my MRI says There is a left paraspinal muscular atrophy....reactions3repliesAwareness
FeaturedStaying Positive with SMA ...Do you have a special way to keep positive despite the challenges of SMA? What works reactions6repliesCopingMental Health
Managing Depression...I want to understand how personal with SMA cope with mental depression when you lose the ability...reactions28repliesCopingDepression
Mental Health Awareness Month: Guilt...Do you ever feel guilt about someone having to take care of you or being your...reactions1replyMental Health
Have you ever attended an abilities exposition?...If so, did you buy or find any useful products? Do you have anything else reactionsrepliesResources
ABLE Savings Accounts...Do you know what an ABLE account is? Do you have experiencing opening one/contributing reactionsrepliesTips & Advice
Accessible Housing Tips...Have you made changes to make your house more accessible for someone with spinal muscular atrophy? If reactionsrepliesAssistive EquipmentTips & Advice
Mental Health Month...May is Mental Health Month. Do you feel that spinal muscular atrophy has an affect on your...reactionsrepliesCopingMental HealthTips & Advice
Self pleasure tips...Please delete if this isn't appropriate, but I was just curious what y'all do to help yourself when...reactionsrepliesIntimacy & Relationships
Sma led dync1h1 mutation ...Hello, I have several dync1h1 mutations and i am looking for expert who can confirm if they...reactions1reply
Welcomed Support for Caregivers...What kind of support do you find useful as the caregiver of someone with SMA? Who gives...reactionsrepliesCaregivingFriends & Family
Community Question: What would you buy?...If you found $100 on the sidewalk and wanted to help yourself manage your SMA, what would reactionsrepliesResources
Resources ...What resources are you aware of that could help people with spinal muscular atrophy? Websites? Organizations? Books? Feel free reactionsrepliesResources
Awareness Month 2023 Spotlight: Your SMA Story ...What brings you to our community? Do you identify has a caregiver, patient, or health...reactionsrepliesAwareness
Vacations & Travel with SMA...A community member recently asked to learn more about how to air travel with SMA. Have you...reactions11replies
SMA Awareness Month Discussion Board: What do you wish others knew about SMA?...If there was one thing you could tell the world about SMA, what would it be?...reactions6repliesAwarenessMyths & Misconceptions
Accessible Summer Fun...Share your tips for accessible summer activities for kids OR adults. What do you do reactionsrepliesExercise & Activity
