Support Animal...Do you have a support animal/pet? What do you love about them? Would you recommend...reactions1replyTips & Advice
Awareness Month 2023 ...Or do you wish there wasn't even an awareness month? All opinions are safe here. Share below....reactions1reply
Tips on Speaking Up!...Share some tips for others living with SMA on how they can speak up for themselves, even...reactions1replyTips & Advice
FeaturedDoctors won’t address my sma...After bringing it up with my doctor, she dismisses it like it’s nothing. Is this something...reactions3repliesHealthcare TeamSymptomsTesting
You are more than someone with SMA. Who are you?...SMA is an all-consuming condition and affects so much of our lives. Other than SMA, reactions11repliesAwareness
Preventing Pressure Injuries for wheelchair bound...He is wheelchair bound and spends a majority of his day in the wheelchair and weight shifting...reactions4replies
Some tips for using and purchasing assistive equipment are ___________....Imagine that you're talking to a recently diagnosed patient or the parent of a recently diagnosed child...reactions4repliesAssistive EquipmentTips & Advice
Holidays with SMA...We'd love to hear about how you celebrate the holidays! Share with us below....reactions1reply
My Chart & other electronic communications...Does it make things easier on you or do you prefer talking to your doctor?...reactionsreplies
Is this SMA?...Besides having severe multilevel spinal stenosis, my MRI says There is a left paraspinal muscular atrophy....reactions3repliesAwareness
FeaturedStaying Positive with SMA ...Do you have a special way to keep positive despite the challenges of SMA? What works reactions6repliesCopingMental Health
Switching from Spinraza to Risdiplam...I'd hate to start then have to switch back and redo loading doses of Spinraza again. Has anyone here...reactions4replies
Managing Depression...I want to understand how personal with SMA cope with mental depression when you lose the ability...reactions28repliesCopingDepression
Have you ever attended an abilities exposition?...If so, did you buy or find any useful products? Do you have anything else reactionsrepliesResources
ABLE Savings Accounts...Do you know what an ABLE account is? Do you have experiencing opening one/contributing reactionsrepliesTips & Advice
Accessible Housing Tips...Have you made changes to make your house more accessible for someone with spinal muscular atrophy? If reactionsrepliesAssistive EquipmentTips & Advice
Mental Health Month...May is Mental Health Month. Do you feel that spinal muscular atrophy has an affect on your...reactionsrepliesCopingMental HealthTips & Advice
Self pleasure tips...Please delete if this isn't appropriate, but I was just curious what y'all do to help yourself when...reactionsrepliesIntimacy & Relationships
Sma led dync1h1 mutation ...Hello, I have several dync1h1 mutations and i am looking for expert who can confirm if they...reactions1reply
