Mental Health Awareness Month: Guilt...Do you ever feel guilt about someone having to take care of you or being your...reactions1replyMental Health
Welcomed Support for Caregivers...What kind of support do you find useful as the caregiver of someone with SMA? Who gives...reactionsrepliesCaregivingFriends & Family
Community Question: What would you buy?...If you found $100 on the sidewalk and wanted to help yourself manage your SMA, what would reactionsrepliesResources
Resources ...What resources are you aware of that could help people with spinal muscular atrophy? Websites? Organizations? Books? Feel free reactionsrepliesResources
Awareness Month 2023 Spotlight: Your SMA Story ...What brings you to our community? Do you identify has a caregiver, patient, or health...reactionsrepliesAwareness
Vacations & Travel with SMA...A community member recently asked to learn more about how to air travel with SMA. Have you...reactions11replies
SMA Awareness Month Discussion Board: What do you wish others knew about SMA?...If there was one thing you could tell the world about SMA, what would it be?...reactions6repliesAwarenessMyths & Misconceptions
Accessible Summer Fun...Share your tips for accessible summer activities for kids OR adults. What do you do reactionsrepliesExercise & Activity
Working with Nonprofits...Do you have experience working with nonprofits? Have you been able to receive funding through them for...reactionsrepliesAssistive EquipmentTips & Advice
Warm Weather Essentials...Summer is here! What things do you keep with you on a day to day...reactions2repliesTips & Advice
Finding Kindness ...If you've experienced the opposite, how have you handled situations where you needed help but people were bystanders?...reactionsrepliesAwareness
What has been the biggest obstacle you have overcome with SMA?...What was your greatest challenge, and how did you get through it?...reactions1replyCopingAwareness
How do you advocate for spinal muscular atrophy/disability rights...Please tell us what issues you advocate for and how....reactionsreplies
Making a home accessible...What home improvement would you do to make your home more accessible?...reactions3repliesDisability
Accessibility Challenges...Have you faced accessibility challenges lately? Maybe when trying to go out and do something social? reactionsrepliesTips & AdviceDisability
What's in your winter essentials tool kit?...Have you found a product(s) that helps keep you extra warm during the winter months? Share with reactions4repliesTips & Advice
SMA Specialist Discussion Board: What Do You Look For?...Feel free to share your experience with SMA specialists, and what you look for when searching for the...reactions6repliesSpecialists
Your Heroes...Tell us about the person who has helped you the most as you've navigated living with SMA. Who has...reactionsrepliesCaregivingFriends & FamilyHealthcare Team
Advice: Younger patients with SMA...What advice would you tell your younger self? Are there things you wish someone would've told you?...reactionsrepliesTips & Advice
