Recently Diagnosed Discussion Board...Ask your questions here and our patient leaders will respond with their experiences....reactionsrepliesNewly Diagnosed
Barriers with SMA...What do you feel are your greatest barriers living with SMA? How do you navigate these barriers?...reactionsrepliesMental Health
Daily Routines...What is your daily routine? Have you found that a routine helps you manage your SMA? Share below....reactions1replyTips & Advice
Do you have experience wearing adaptive clothing?...Have you maybe participated in an adaptive clothing fashion show? Do you have any favorite brands? Share...reactions6repliesTips & Advice
Which assistive devices have you found most helpful?...Please share your experience with spinal muscular atrophy assistive devices. ...reactions4repliesAssistive Equipment
Resources for Assistance...What non-profit organizations have you found helpful? What services do they provide (financial, caregiving, other supportive services)?...reactionsrepliesCost
FeaturedTips for Cold/Flu Season...Getting sick is no fun! What're some tips and tricks you have to survive cold and flu season?...reactions4repliesTips & Advice
How do you manage your energy with SMA?...What tips do you have that have helped you manage and conserve your energy while living with SMA?...reactions4repliesTips & Advice
A Challenge I've Recently Overcome Is ______________...Fill in the blank. What is a challenge you've recently overcome while living with SMA?...reactionsrepliesTips & Advice
FeaturedTeaching Children About Disabilities Discussion Board ...When you were a child, was it difficult to interact with non-disabled children? Did your school help...reactions4repliesDisabilityFriends & FamilyEducation & Schooling
Accessibility Etiquette...What drives you crazy about the way people interact with you as someone with a disability? How...reactions2repliesAwarenessFriends & FamilyMyths & Misconceptions
FeaturedA Letter to Your Younger Self...What's one thing you would tell your younger self with SMA? Comment below and start the discussion....reactionsreplies
Welcome to the spinal muscular atrophy community!...Welcome to our community! Please introduce yourself and tell us what has brought you here....reactions2replies
Caregiving ...Are you a caregiver for someone with spinal muscular atrophy? Share your story and experiences here. ...reactionsrepliesCaregiving
A Misconception I've Faced Living with SMA Is __________...What misconceptions have people expressed to you about living with SMA? How did you approach them / prove...reactionsrepliesTips & AdviceMyths & Misconceptions
