Do you have experience wearing adaptive clothing?...Have you maybe participated in an adaptive clothing fashion show? Do you have any favorite brands? Share...reactions6repliesTips & Advice
Which assistive devices have you found most helpful?...Please share your experience with spinal muscular atrophy assistive devices. ...reactions4repliesAssistive Equipment
Resources for Assistance...What non-profit organizations have you found helpful? What services do they provide (financial, caregiving, other supportive services)?...reactionsrepliesCost
FeaturedTips for Cold/Flu Season...Getting sick is no fun! What're some tips and tricks you have to survive cold and flu season?...reactions4repliesTips & Advice
How do you manage your energy with SMA?...What tips do you have that have helped you manage and conserve your energy while living with SMA?...reactions4repliesTips & Advice
A Challenge I've Recently Overcome Is ______________...Fill in the blank. What is a challenge you've recently overcome while living with SMA?...reactionsrepliesTips & Advice
FeaturedTeaching Children About Disabilities Discussion Board ...When you were a child, was it difficult to interact with non-disabled children? Did your school help...reactions4repliesDisabilityFriends & FamilyEducation & Schooling
How do you advocate for spinal muscular atrophy/disability rights...Please tell us what issues you advocate for and how....reactionsreplies
Accessibility Etiquette...What drives you crazy about the way people interact with you as someone with a disability? How...reactions2repliesAwarenessFriends & FamilyMyths & Misconceptions
FeaturedA Letter to Your Younger Self...What's one thing you would tell your younger self with SMA? Comment below and start the discussion....reactionsreplies
Welcome to the spinal muscular atrophy community!...Welcome to our community! Please introduce yourself and tell us what has brought you here....reactions2replies
What has been the biggest obstacle you have overcome with SMA?...What was your greatest challenge, and how did you get through it?...reactions1replyCopingAwareness
Caregiving ...Are you a caregiver for someone with spinal muscular atrophy? Share your story and experiences here. ...reactionsrepliesCaregiving
A Misconception I've Faced Living with SMA Is __________...What misconceptions have people expressed to you about living with SMA? How did you approach them / prove...reactionsrepliesTips & AdviceMyths & Misconceptions
Young Adults With SMA: How do you balance the need for independence with the need for care?...What are your tips for the transition from childhood/teen years to adulthood with SMA?...reactionsrepliesTips & Advice
Making a home accessible...What home improvement would you do to make your home more accessible?...reactions3repliesDisability