Embracing The Challenges...One of the most profound transformations in my life has come from embracing the practice of...reactions1comment
Turning 30...Because of the financial burden of hiring an additional caregiver and after ten years of this tense reactions1comment
What I Would Tell My Teenage Self...I’m approaching my 33rd year of life, and as I reflect on my younger years...reactionscomments
SMA and Health Insurance...People under 65 quality for Medicare after receiving Social Security Disability Insurance (SSDI) for 2 years....
My Life with SMA...What we always do is just enjoy our life being pushed in the wheelchair. Hey, reactions1comment
Take the Health and Media Habits Survey!...As a thank you, if you qualify and complete the survey, you will be...reactionscomments
Sample Page...(And gettin' caught in the rain.)...or something like this:The XYZ Doohickey Company was founded in 1971, and has...
A Sense of Belonging...Last night as of writing this, I had small happy cry and moment of gratitude for those...reactionscomments
Living Life in a Wheelchair...Living life in a wheelchair, you often encounter and have to react to two different situations...reactionscomments
Can Someone Really Predict Life Expectancy?...Instead they tried to rob me of my positive outlook on life. I didn’t...reactionscomments
The Promise of Treatment...The dream of any parent is to give our child the best possible opportunity to have...reactionscomments
Fears Of Flu and Fevers...Fortunately, I've managed to recover each time, but the mental impact of these illnesses has grown significantly in...reactionscomments
A Letter to My Parents: WE are Living with SMA...Yes, I live with the unique situation of life in this chair. But the reality reactions4comments
Where Does This Leave Siblings?...A very special time in Allison’s life was the birth of her first child. We reactions1comment
On Being Told To Live Independently...Since childhood, one thing that my parents taught me was to be proud of who reactions1comment
Balancing Life When You Are Ill...But there is an element that is perhaps forgotten - balancing regular episodes of illnesses with life!...reactions2comments
Memories of the Labor Day Telethon...Ironically, this tradition became such an important part of our family’s life....reactionscomments
