Curious About How Others Manage SMA? Share Your Experience in Our Polls...relationships, and quality of life....reactionscomments
Working With Health Aids and In-Home Assistants...The goals of at-home SMA management are to reduce symptoms, prevent complications, and improve quality of
Spinal Fusion Surgery for Spinal Muscular Atrophy...Spinal fusion can improve comfort, appearance, and overall quality of life....
Mental Health Impact...Lack of control and fear of the future are common among children with SMA. This can lead to anxiety...
Caregiver Corner...Many siblings feel that caregiving improves their quality of life. But siblings take on a large burden...
Living With SMA...Depending on other people can cause them to feel like they have a lack of control. This...
Challenges with SMA Treatments...Treatments are all about stabilization and the possibility of small, quality of life improvements like better speech...reactionscomments
Needing Speech Therapy With SMA...It's never too late to invest in your quality of life....reactionscomments
Understanding Clinical Trials...Quality-of-life trials look at ways to improve the quality of life of people...reactionscomments
ABLE Account Information...ABLE funds can be used by the account owner to fund expenses like health needs, education, food, housing...reactionscomments
Treatments for Spinal Muscular Atrophy...Early respiratory support and regular monitoring can improve quality of life and life expectancy.Soon after diagnosis, parents should...
Tips for Talking to Your Doctor About SMA...This can help improve quality of life and life expectancy. Communicating with doctors about SMA can be...reactionscomments
SMA In America: Results from Our 2022 Survey...The survey ran from April 19, 2021 – April 8, 2022, and asked 90 questions about everything from addressing...reactionscomments
Complementary and Alternative Medicine...It also includes physical therapy and breathing support. This improves quality of life and reduces complications....
What to Consider When Choosing Between Spinraza and Evrysdi...They have both had a large impact on improving the quality of life of those living...reactionscomments
Severe neck weakness ...It is affecting my quality of life hugely, so I was wondering if...reactions7repliesComplicationsSurgerySymptoms
Thoughtful Christmas Gifts for Wheelchair Users...add to someone’s quality of life....reactionscomments
