How do you find balance?When you're ill for a long time and can't stick to the things you love doing, how do you manage your mental health? Do you find it difficult to balance...Reactions 0 reactions Comments1 replies
Vacations & Travel with SMAA community member recently asked to learn more about how to air travel with SMA. Have you done lots of traveling before as someone with SMA? Does a loved one...Reactions 0 reactions Comments8 replies
ABLE Savings AccountsDo you know what an ABLE account is? Do you have experiencing opening one/contributing to one for your own expenses of living with a disability? Share with our SMA community!...Reactions 0 reactions Comments0 repliesTips & Advice
How to get up from ground after falling?Ever since I lost my ability to get up from the floor unassisted I am always really cautious while going outside and roaming about because if I fall down I...Reactions 0 reactions Comments2 repliesAssistive EquipmentTips & AdviceTravel
Severe neck weakness I'm 39 years old and live in Portugal. Was diagnosed with SMA type2 in London (Hammersmith Hospital) around my early teenager years, and at the age of 18 I had...Reactions 0 reactions Comments6 repliesSurgeryComplicationsSymptoms
Food alternativesI am a SMA type 3 person and onset started around age 13. I am currently 38 and ambulatory, though it is annoying and painful when I walk for long...Reactions 0 reactions Comments3 repliesDiet & Nutrition
Standing my ground Hello everyone! I recently wrote an article that I'm waiting to get published all about standing my ground. I've gotten better at boundaries (even though I feel the guilt sometimes...Reactions 0 reactions Comments0 repliesMental Health
Loss Support Thread Have you lost a loved one to spinal muscular atrophy? This is a safe space for you....Reactions 0 reactions Comments0 replies
Accessibility EtiquetteWhat guidelines need to be written in an “accessibility etiquette” guide? What drives you crazy about the way people interact with you as someone with a disability? How do you...Reactions 0 reactions Comments2 repliesAwarenessFriends & FamilyMyths & Misconceptions
Can I be I was hurt on the job in 2018 I was hit in the head by a 250lb beem and after 6 surgerys im left prelized on my left side and...Reactions 0 reactions Comments1 repliesDepression