FeaturedCommon Myths & Misconceptions You've FacedWhat are some common myths & misconceptions you've faced living with SMA?...Reactions 0 reactions Comments3 repliesMyths & Misconceptions
FeaturedActive 2 days agoDating with SMAWhat has your experience been like while dating with SMA? Do you tend to date others with SMA or have you been in an inter-abled relationship before? What are some...Reactions 0 reactions Comments3 repliesIntimacy & RelationshipsTips & Advice
Active todaySevere neck weakness I'm 39 years old and live in Portugal. Was diagnosed with SMA type2 in London (Hammersmith Hospital) around my early teenager years, and at the age of 18 I had...Reactions 0 reactions Comments7 repliesComplicationsSurgerySymptoms
Active todayHow do you manage your energy with SMA?What tips do you have that have helped you manage and conserve your energy while living with SMA?...Reactions 0 reactions Comments4 repliesTips & Advice
Active todayWhat's in your winter essentials tool kit?Have you found a product(s) that helps keep you extra warm during the winter months? Share with our community!...Reactions 0 reactions Comments3 repliesTips & Advice
Active todayActs of KindnessHave you experienced radical kindness or inclusivity recently? Let's share positive stories with our community!...Reactions 0 reactions Comments1 replies
Active todaySupport AnimalDo you have a support animal/pet? What do you love about them? Would you recommend a support animal for other SMA patients?...Reactions 0 reactions Comments1 repliesTips & Advice
Active 2 days agoHow do you combat feeling low? What lifts you back up on those hard days? -Jennifer ModeratorReactions 0 reactions Comments0 replies
Active 2 days agoSelf Care RoutineSome days it can be really hard to take care of yourself, but on the easier days you might find yourself having a routine you like to stick to. What's...Reactions 0 reactions Comments1 repliesTips & AdviceMental Health
Active 2 days agoMental Health Awareness Month: GuiltDo you ever feel guilt about someone having to take care of you or being your caregiver? Tell us more about your experiences here....Reactions 0 reactions Comments1 repliesMental Health
Young Adults With SMA: How do you balance the need for independence with the need for care?What are your tips for the transition from childhood/teen years to adulthood with SMA?...Reactions 0 reactions Comments0 repliesTips & Advice