The Joy of the MDA Summer CampI think we all can remember watching the MDA Telethon over the years. In addition to raising funds for research, a week at a summer camp for kids with a...
Needing My Husband's Help in a Public RestroomI can honestly say some of my funnier moments coping with spinal muscular atrophy have come from having to use public restrooms. However, it wasn’t until I got married that...
Asking For Help With SMA: Grocery ShoppingLiving with spinal muscular atrophy (SMA) Type 2 means navigating a world where asking for help is a constant necessity. My body simply cannot do everything I want it to,...
The Joy of the MDA Summer CampI think we all can remember watching the MDA Telethon over the years. In addition to raising funds for research, a week at a summer camp for kids with a...
Needing My Husband's Help in a Public RestroomI can honestly say some of my funnier moments coping with spinal muscular atrophy have come from having to use public restrooms. However, it wasn’t until I got married that...
Asking For Help With SMA: Grocery ShoppingLiving with spinal muscular atrophy (SMA) Type 2 means navigating a world where asking for help is a constant necessity. My body simply cannot do everything I want it to,...
The Joy of the MDA Summer CampI think we all can remember watching the MDA Telethon over the years. In addition to raising funds for research, a week at a summer camp for kids with a...
Needing My Husband's Help in a Public RestroomI can honestly say some of my funnier moments coping with spinal muscular atrophy have come from having to use public restrooms. However, it wasn’t until I got married that...
Asking For Help With SMA: Grocery ShoppingLiving with spinal muscular atrophy (SMA) Type 2 means navigating a world where asking for help is a constant necessity. My body simply cannot do everything I want it to,...
Wheelchair Accessible Seating HacksWho has dealt with the frustration of securing wheelchair-accessible seats? It can be a pain in the neck sometimes. Over the years I’ve gone to hundreds of sporting events and...reactions3comments
Grieving Over a Spoon and ForkWho would've known that a seemingly simple pair of utensils could carry such emotional weight? The other night, my sister invited us over to her house for dinner. This wasn't...reactions1comment
Featured forum Would you be willing to share your SMA caregiving story?We'd love to hear from you! Are you interested in connecting with us to interview about your SMA caregiving experience? If so, please email us at contact@spinalmuscularatrophy.net. You’re also welcome...reactionsreplies
Featured story Welcome to SpinalMuscularAtrophy.net StoriesAt SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...reactionscomments
