Embracing The ChallengesI had the opportunity to participate in a video production for Rare Disease Day 2025, and it was a truly wonderful experience. The shooting took place in an entirely different...
Navigating Life Decisions with SMAA few weeks ago, I went in for my routine pulmonary checkup. These appointments happen every six to twelve months because of my spinal muscular atrophy type 2 (SMA) and...
Losing Weight With SMAWhen people think about losing weight, they often envision crafting an exercise routine tailored to their body's needs—a regimen that promises to target and tone problem areas. They hit the...
Embracing The ChallengesI had the opportunity to participate in a video production for Rare Disease Day 2025, and it was a truly wonderful experience. The shooting took place in an entirely different...
Navigating Life Decisions with SMAA few weeks ago, I went in for my routine pulmonary checkup. These appointments happen every six to twelve months because of my spinal muscular atrophy type 2 (SMA) and...
Losing Weight With SMAWhen people think about losing weight, they often envision crafting an exercise routine tailored to their body's needs—a regimen that promises to target and tone problem areas. They hit the...
Embracing The ChallengesI had the opportunity to participate in a video production for Rare Disease Day 2025, and it was a truly wonderful experience. The shooting took place in an entirely different...
Navigating Life Decisions with SMAA few weeks ago, I went in for my routine pulmonary checkup. These appointments happen every six to twelve months because of my spinal muscular atrophy type 2 (SMA) and...
Losing Weight With SMAWhen people think about losing weight, they often envision crafting an exercise routine tailored to their body's needs—a regimen that promises to target and tone problem areas. They hit the...
Making Medical Care More Accessible: 5 Simple Steps to Get It RightIf you’ve ever felt frustrated during a doctor’s visit, you’re not alone. For many of us with disabilities, those visits can sometimes feel more like obstacles to overcome than opportunities...Reactions0reactionsComments1 comments
Anxious When I Am AloneI was having a panic attack about being alone. As of writing this, I got a facial yesterday. My parents decided to hang out by the pool in the spa...Reactions0reactionsComments3 comments
Featured forum Would you be willing to share your SMA caregiving story?We'd love to hear from you! Are you interested in connecting with us to interview about your SMA caregiving experience? If so, please email us at contact@spinalmuscularatrophy.net. You’re also welcome...Reactions0reactionsComments0 replies
Featured story Welcome to SpinalMuscularAtrophy.net StoriesAt SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...Reactions0reactionsComments0 comments
