If I Knew Then What I Know NowWhen I was around 10, I was going through a lot of drama with my personal nurses. So now, I want to put a positive (but also realistic) spin on... By Kellie Cusack3 min readBookmark for later
How Alexa Became One of My Disability Must-HavesI was talking to my Public Partnerships consultant a few weeks ago (PP is a program where I live where someone you love can get paid to help take care... By Kellie Cusack2 min readBookmark for later
Rocking the Solo LifeWell, folks! It's been a wild ride – a decade of liberation from marriage and an interesting tango with spinal muscular atrophy (SMA). Who needs a partner when you can... By Allie Williams3 min readBookmark for later
If I Knew Then What I Know NowWhen I was around 10, I was going through a lot of drama with my personal nurses. So now, I want to put a positive (but also realistic) spin on... By Kellie Cusack3 min readBookmark for later
How Alexa Became One of My Disability Must-HavesI was talking to my Public Partnerships consultant a few weeks ago (PP is a program where I live where someone you love can get paid to help take care... By Kellie Cusack2 min readBookmark for later
Rocking the Solo LifeWell, folks! It's been a wild ride – a decade of liberation from marriage and an interesting tango with spinal muscular atrophy (SMA). Who needs a partner when you can... By Allie Williams3 min readBookmark for later
If I Knew Then What I Know NowWhen I was around 10, I was going through a lot of drama with my personal nurses. So now, I want to put a positive (but also realistic) spin on... By Kellie Cusack3 min readBookmark for later
How Alexa Became One of My Disability Must-HavesI was talking to my Public Partnerships consultant a few weeks ago (PP is a program where I live where someone you love can get paid to help take care... By Kellie Cusack2 min readBookmark for later
Rocking the Solo LifeWell, folks! It's been a wild ride – a decade of liberation from marriage and an interesting tango with spinal muscular atrophy (SMA). Who needs a partner when you can... By Allie Williams3 min readBookmark for later
Grieving Over a Spoon and ForkWho would've known that a seemingly simple pair of utensils could carry such emotional weight? The other night, my sister invited us over to her house for dinner. This wasn't... By Megan DeJarnett3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Importance of Wearing Your Seatbelt with SMAIn my younger days, donning my belt each morning was a steadfast ritual. It was something I did everyday, like brushing my teeth. Annoying? Undoubtedly. A safety measure? Absolutely. As... By Jennifer Greer4 min readBookmark for laterReactions 0 reactions Comments0 comments
Welcome to SpinalMuscularAtrophy.net StoriesAt SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...Bookmark for laterReactions 0 reactions Comments0 comments
Will you take our In America survey and help others understand the true impact of SMA?To better understand the patient experience and realities of SMA, we are fielding our SMA In America survey. By taking this anonymous survey, you can help everyone better understand the...Bookmark for laterReactions 0 reactions Comments0 replies