Parenting From a WheelchairBeing a mother is an adventure in itself, but when you add two young children and a wheelchair to the mix, things get even more interesting! As a mother, with... By Megan DeJarnett2 min readBookmark for later
Honest Look at a Parent’s HeartbreakThe emotions that each parent truly lives with from that first day our child is given a diagnosis of a neuromuscular disease. In reality, each parent feels that same initial... By Maryalice Noon2 min readBookmark for later
How I Find Worth in CaretakingTaking care of someone can be hard and trying. Especially when it is a 24/7 gig. There are days I wish I could get a break. As of right now... By Suzanne Cutler2 min readBookmark for later
Parenting From a WheelchairBeing a mother is an adventure in itself, but when you add two young children and a wheelchair to the mix, things get even more interesting! As a mother, with... By Megan DeJarnett2 min readBookmark for later
Honest Look at a Parent’s HeartbreakThe emotions that each parent truly lives with from that first day our child is given a diagnosis of a neuromuscular disease. In reality, each parent feels that same initial... By Maryalice Noon2 min readBookmark for later
How I Find Worth in CaretakingTaking care of someone can be hard and trying. Especially when it is a 24/7 gig. There are days I wish I could get a break. As of right now... By Suzanne Cutler2 min readBookmark for later
Parenting From a WheelchairBeing a mother is an adventure in itself, but when you add two young children and a wheelchair to the mix, things get even more interesting! As a mother, with... By Megan DeJarnett2 min readBookmark for later
Honest Look at a Parent’s HeartbreakThe emotions that each parent truly lives with from that first day our child is given a diagnosis of a neuromuscular disease. In reality, each parent feels that same initial... By Maryalice Noon2 min readBookmark for later
How I Find Worth in CaretakingTaking care of someone can be hard and trying. Especially when it is a 24/7 gig. There are days I wish I could get a break. As of right now... By Suzanne Cutler2 min readBookmark for later
Large Medical Team Helps a Child With SMAWhen our daughter, Jessie was born we were overjoyed. We were unaware of what was in store for my daughter and our family. Jessie was not meeting her age-related milestones... By Marc Mitnick3 min readBookmark for laterReactions 0 reactions Comments0 comments
My First Wheelchair Seating ClinicIn previous articles, I’ve written about perception. How we are perceived is a big part of ourselves. When I went off to college, I knew that I wouldn’t be able... By Mike Noon2 min readBookmark for laterReactions 0 reactions Comments0 comments
Welcome to SpinalMuscularAtrophy.net StoriesAt SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...Bookmark for laterReactions 0 reactions Comments0 comments
Air Travel with SMAA community member recently asked to learn more about how to air travel with SMA. Have you done lots of traveling before as someone with SMA? Does a loved one...Bookmark for laterReactions 0 reactions Comments2 replies
