Dressing Room Experience as a Wheelchair User: Tips and Personal InsightsTrying on clothes in a department store can be a daunting task for anyone, but it can be even more challenging if you use a wheelchair. As a woman with... By Megan DeJarnett3 min readBookmark for later
An Accessible Cruise VacationI just went on a birthday cruise on the Disney Wish with my mama! I wanted to share about accessibility and what helped the most to make the cruise the... By Kellie Cusack2 min readBookmark for later
Fears of the BiPAPLiving with spinal muscular atrophy, you'll often find yourself consulting a pulmonologist from a young age. Over the years, there have been significant advancements in pulmonology for this rare condition... By Megan DeJarnett3 min readBookmark for later
Dressing Room Experience as a Wheelchair User: Tips and Personal InsightsTrying on clothes in a department store can be a daunting task for anyone, but it can be even more challenging if you use a wheelchair. As a woman with... By Megan DeJarnett3 min readBookmark for later
An Accessible Cruise VacationI just went on a birthday cruise on the Disney Wish with my mama! I wanted to share about accessibility and what helped the most to make the cruise the... By Kellie Cusack2 min readBookmark for later
Fears of the BiPAPLiving with spinal muscular atrophy, you'll often find yourself consulting a pulmonologist from a young age. Over the years, there have been significant advancements in pulmonology for this rare condition... By Megan DeJarnett3 min readBookmark for later
Dressing Room Experience as a Wheelchair User: Tips and Personal InsightsTrying on clothes in a department store can be a daunting task for anyone, but it can be even more challenging if you use a wheelchair. As a woman with... By Megan DeJarnett3 min readBookmark for later
An Accessible Cruise VacationI just went on a birthday cruise on the Disney Wish with my mama! I wanted to share about accessibility and what helped the most to make the cruise the... By Kellie Cusack2 min readBookmark for later
Fears of the BiPAPLiving with spinal muscular atrophy, you'll often find yourself consulting a pulmonologist from a young age. Over the years, there have been significant advancements in pulmonology for this rare condition... By Megan DeJarnett3 min readBookmark for later
Therapy and Mental Health with SMAWarning: This post discusses my experience with mental health including anxiety and depression. Reader discretion is advised. I wanted to discuss my experience with therapy and mental health because it... By Kellie Cusack2 min readBookmark for laterReactions 0 reactions Comments0 comments
Living With a Disability: Movie RecommendationsWe asked our Health Leaders, "What good movies or television shows give a credible account of living with disability?" Here are some ideas for good things to watch when you... By Editorial Team3 min readBookmark for laterReactions 0 reactions Comments0 comments
Welcome to SpinalMuscularAtrophy.net StoriesAt SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...Bookmark for laterReactions 0 reactions Comments0 comments
Preventing Pressure Injuries for wheelchair boundHi SMA community, I am a caregiver for my 70yr old father diagnosed with SMA 3. He is currently receiving Spinraza. Our biggest challenge in keeping him healthy is preventing...Bookmark for laterReactions 0 reactions Comments2 replies
