The Joy of the MDA Summer CampI think we all can remember watching the MDA Telethon over the years. In addition to raising funds for research, a week at a summer camp for kids with a... By Maryalice NoonBookmark for later
Essential Items to Manage SMALiving with spinal muscular atrophy takes a lot of preparation and planning ahead. We reached out to our team of advocates here at SpinalMuscularAtrophy.net to find out what they always... By Editorial TeamBookmark for later
Dealing with Changes in SMASpinal muscular atrophy has a host of challenges we all deal with at some stage. While all of our journeys with SMA are very different, I have always found that... By Michaela HollywoodBookmark for later
The Joy of the MDA Summer CampI think we all can remember watching the MDA Telethon over the years. In addition to raising funds for research, a week at a summer camp for kids with a... By Maryalice NoonBookmark for later
Essential Items to Manage SMALiving with spinal muscular atrophy takes a lot of preparation and planning ahead. We reached out to our team of advocates here at SpinalMuscularAtrophy.net to find out what they always... By Editorial TeamBookmark for later
Dealing with Changes in SMASpinal muscular atrophy has a host of challenges we all deal with at some stage. While all of our journeys with SMA are very different, I have always found that... By Michaela HollywoodBookmark for later
The Joy of the MDA Summer CampI think we all can remember watching the MDA Telethon over the years. In addition to raising funds for research, a week at a summer camp for kids with a... By Maryalice NoonBookmark for later
Essential Items to Manage SMALiving with spinal muscular atrophy takes a lot of preparation and planning ahead. We reached out to our team of advocates here at SpinalMuscularAtrophy.net to find out what they always... By Editorial TeamBookmark for later
Dealing with Changes in SMASpinal muscular atrophy has a host of challenges we all deal with at some stage. While all of our journeys with SMA are very different, I have always found that... By Michaela HollywoodBookmark for later
Day in the Life Without Your PCAI am coming up on my 12th year of using a personal care assistant (PCA), who isn't a personal relative. There are pros and cons to using a PCA in... By Megan DeJarnettBookmark for later Reactions 0 reactions Comments0 comments
Staying Mentally HealthyI’m in my mid 40’s and I find it encouraging that mental health has become more out in the open. I know living with spinal muscular atrophy has probably made... By Mike NoonBookmark for later Reactions 0 reactions Comments0 comments
Welcome to SpinalMuscularAtrophy.net StoriesAt SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...Bookmark for later Reactions 0 reactions Comments0 comments
Which assistive devices have you found most helpful? Please share your experience with spinal muscular atrophy assistive devices. ...Bookmark for later Reactions 0 reactions Comments6 replies