Balancing Life When You Are IllLife with SMA has two halves - the mobility half, and the illness half. Managing the mobility issues and illness of spinal muscular atrophy is something we all focus on... By Michaela Hollywood3 min readBookmark for later
Getting Tips and Support at the 2023 Cure SMA ConferenceLast year was the first in-person Cure SMA conference post-pandemic, and unfortunately, I couldn't go due to health issues. I was absolutely devastated, so to finally be able to go... By Kellie Cusack4 min readBookmark for later
Managing EnergyI often struggle with low energy, year-round, but especially in the winter. I'd like to share some things that have helped me and hopefully will help you. I get low... By Kellie Cusack2 min readBookmark for later
Balancing Life When You Are IllLife with SMA has two halves - the mobility half, and the illness half. Managing the mobility issues and illness of spinal muscular atrophy is something we all focus on... By Michaela Hollywood3 min readBookmark for later
Getting Tips and Support at the 2023 Cure SMA ConferenceLast year was the first in-person Cure SMA conference post-pandemic, and unfortunately, I couldn't go due to health issues. I was absolutely devastated, so to finally be able to go... By Kellie Cusack4 min readBookmark for later
Managing EnergyI often struggle with low energy, year-round, but especially in the winter. I'd like to share some things that have helped me and hopefully will help you. I get low... By Kellie Cusack2 min readBookmark for later
Balancing Life When You Are IllLife with SMA has two halves - the mobility half, and the illness half. Managing the mobility issues and illness of spinal muscular atrophy is something we all focus on... By Michaela Hollywood3 min readBookmark for later
Getting Tips and Support at the 2023 Cure SMA ConferenceLast year was the first in-person Cure SMA conference post-pandemic, and unfortunately, I couldn't go due to health issues. I was absolutely devastated, so to finally be able to go... By Kellie Cusack4 min readBookmark for later
Managing EnergyI often struggle with low energy, year-round, but especially in the winter. I'd like to share some things that have helped me and hopefully will help you. I get low... By Kellie Cusack2 min readBookmark for later
Just Let Me Return ThisHome delivery of groceries and online shopping became a normal occurrence for many people during the COVID-19 pandemic. As someone with mobility issues because of my spinal muscular atrophy, my... By Allie Williams3 min readBookmark for laterReactions 0 reactions Comments0 comments
Talking to Others About SMAWhat are your tips for talking to your family and friends about SMA? What are your tips for talking to your coworkers or casual friends about SMA? Mike: This is... By SpinalMuscularAtrophy.net Team2 min readBookmark for laterReactions 0 reactions Comments0 comments
Welcome to SpinalMuscularAtrophy.net StoriesAt SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...Bookmark for laterReactions 0 reactions Comments0 comments
How do you find balance?When you're ill for a long time and can't stick to the things you love doing, how do you manage your mental health? Do you find it difficult to balance...Bookmark for laterReactions 0 reactions Comments0 replies
