Summertime With SMAGood old summertime! How do you manage the summer with your SMA? Do you embrace the hot summer weather or prefer to stay indoors in the air conditioning? And what...
SMA Treatment AdvancementsWe asked our team of advocates: What have advancements in treatment for spinal muscular atrophy meant to you?Allie: The celebration of life. I have watched my disease take away so...
Needing Speech Therapy With SMARecovering from my kidney stone removal didn’t go as planned. I expected some discomfort, but I never anticipated the complications that followed. Since it was an outpatient procedure, I went...
Summertime With SMAGood old summertime! How do you manage the summer with your SMA? Do you embrace the hot summer weather or prefer to stay indoors in the air conditioning? And what...
SMA Treatment AdvancementsWe asked our team of advocates: What have advancements in treatment for spinal muscular atrophy meant to you?Allie: The celebration of life. I have watched my disease take away so...
Needing Speech Therapy With SMARecovering from my kidney stone removal didn’t go as planned. I expected some discomfort, but I never anticipated the complications that followed. Since it was an outpatient procedure, I went...
Summertime With SMAGood old summertime! How do you manage the summer with your SMA? Do you embrace the hot summer weather or prefer to stay indoors in the air conditioning? And what...
SMA Treatment AdvancementsWe asked our team of advocates: What have advancements in treatment for spinal muscular atrophy meant to you?Allie: The celebration of life. I have watched my disease take away so...
Needing Speech Therapy With SMARecovering from my kidney stone removal didn’t go as planned. I expected some discomfort, but I never anticipated the complications that followed. Since it was an outpatient procedure, I went...
The Joy of the MDA Summer CampI think we all can remember watching the MDA Telethon over the years. In addition to raising funds for research, a week at a summer camp for kids with a...reactionscomments
Sorry To Miss The CureSMA ConferenceI really wanted to go to The CureSMA Conference a recent year! I have no idea why Mike didn’t sign us up. I’m still so mad at him! Why on...reactions3comments
Featured forum Would you be willing to share your SMA caregiving story?We'd love to hear from you! Are you interested in connecting with us to interview about your SMA caregiving experience? If so, please email us at contact@spinalmuscularatrophy.net. You’re also welcome...reactionsreplies
Featured story Welcome to SpinalMuscularAtrophy.net StoriesAt SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...reactionscomments
