Jessie's Bucket List--What is on Yours?Everyone has a bucket list. A bucket list is something you want to do or experience before you die. In 1989, Jessie had a bucket list also. When she was... By Marc Mitnick3 min readBookmark for later
Letting go of a PCALike any other job in this world, being someone’s personal care assistant just isn’t for everyone. But unlike every other job, this position is very close to home. Both literally... By Megan DeJarnett3 min readBookmark for later
5 Disability Tips for Attending Large Venue EventsWho doesn't like going to a concert, performance, or sporting event? The problem is, it's not always easy to attend events at large events while living with a disability, such... By Samantha Przybylski3 min readBookmark for later
Jessie's Bucket List--What is on Yours?Everyone has a bucket list. A bucket list is something you want to do or experience before you die. In 1989, Jessie had a bucket list also. When she was... By Marc Mitnick3 min readBookmark for later
Letting go of a PCALike any other job in this world, being someone’s personal care assistant just isn’t for everyone. But unlike every other job, this position is very close to home. Both literally... By Megan DeJarnett3 min readBookmark for later
5 Disability Tips for Attending Large Venue EventsWho doesn't like going to a concert, performance, or sporting event? The problem is, it's not always easy to attend events at large events while living with a disability, such... By Samantha Przybylski3 min readBookmark for later
Jessie's Bucket List--What is on Yours?Everyone has a bucket list. A bucket list is something you want to do or experience before you die. In 1989, Jessie had a bucket list also. When she was... By Marc Mitnick3 min readBookmark for later
Letting go of a PCALike any other job in this world, being someone’s personal care assistant just isn’t for everyone. But unlike every other job, this position is very close to home. Both literally... By Megan DeJarnett3 min readBookmark for later
5 Disability Tips for Attending Large Venue EventsWho doesn't like going to a concert, performance, or sporting event? The problem is, it's not always easy to attend events at large events while living with a disability, such... By Samantha Przybylski3 min readBookmark for later
How Do You Handle Cold Weather?We asked our Patient Leaders here at SpinalMuscularAtrophy.net, "How do you handle colder weather?" Does cold weather impact their SMA symptoms? Do they have go-to workarounds to avoid going out?... By Editorial Team5 min readBookmark for later Reactions 0 reactions Comments0 comments
Hurt Back and Guilty ConsciousI’ve talked about the guilt I deal with in regards to the amount of work people need to exert in order to assist me throughout the day because of my... By Mike Noon2 min readBookmark for later Reactions 0 reactions Comments0 comments
Welcome to SpinalMuscularAtrophy.net StoriesAt SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...Bookmark for later Reactions 0 reactions Comments0 comments
Treatment Journey UpdateWhere are you on your treatment journey? Have you begun treatment or are you weighing your options? Do you have experience switching or stopping treatment? If you stopped, why did...Bookmark for later Reactions 0 reactions Comments0 replies
