Summertime With SMAGood old summertime! How do you manage the summer with your SMA? Do you embrace the hot summer weather or prefer to stay indoors in the air conditioning? And what... By SpinalMuscularAtrophy.net Team2 min readBookmark for later
Hydration Hacks For a Wheelchair UserNavigating life as a wheelchair user with spinal muscular atrophy has its unique set of challenges, and among those, something as seemingly simple as staying hydrated has been a personal... By Megan DeJarnett2 min readBookmark for later
How Do I Connect With Other People in the SMA Community?Spinal muscular atrophy (SMA) is a genetic disorder where muscles become weak and waste away. Our goal at SpinalMuscularAtrophy.net is to connect people living with SMA and their caregivers with ... By SpinalMuscularAtrophy.net Team2 min readBookmark for later
Summertime With SMAGood old summertime! How do you manage the summer with your SMA? Do you embrace the hot summer weather or prefer to stay indoors in the air conditioning? And what... By SpinalMuscularAtrophy.net Team2 min readBookmark for later
Hydration Hacks For a Wheelchair UserNavigating life as a wheelchair user with spinal muscular atrophy has its unique set of challenges, and among those, something as seemingly simple as staying hydrated has been a personal... By Megan DeJarnett2 min readBookmark for later
How Do I Connect With Other People in the SMA Community?Spinal muscular atrophy (SMA) is a genetic disorder where muscles become weak and waste away. Our goal at SpinalMuscularAtrophy.net is to connect people living with SMA and their caregivers with ... By SpinalMuscularAtrophy.net Team2 min readBookmark for later
Summertime With SMAGood old summertime! How do you manage the summer with your SMA? Do you embrace the hot summer weather or prefer to stay indoors in the air conditioning? And what... By SpinalMuscularAtrophy.net Team2 min readBookmark for later
Hydration Hacks For a Wheelchair UserNavigating life as a wheelchair user with spinal muscular atrophy has its unique set of challenges, and among those, something as seemingly simple as staying hydrated has been a personal... By Megan DeJarnett2 min readBookmark for later
How Do I Connect With Other People in the SMA Community?Spinal muscular atrophy (SMA) is a genetic disorder where muscles become weak and waste away. Our goal at SpinalMuscularAtrophy.net is to connect people living with SMA and their caregivers with ... By SpinalMuscularAtrophy.net Team2 min readBookmark for later
Lack of Accessible UbersIn May, I was out to dinner with my girlfriend Suzanne and a few of my old colleagues. After dinner, Suzanne wanted to go to Homegoods to look at some... By Mike Noon2 min readBookmark for laterReactions0reactionsComments0 comments
My Journey With EvrysdiHi friends! Today I wanted to write about my journey with Evrysdi. If you or a loved one are making the decision to get on it, but aren't sure what's... By Kellie Cusack4 min readBookmark for laterReactions0reactionsComments0 comments
Welcome to SpinalMuscularAtrophy.net StoriesAt SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...Bookmark for laterReactions0reactionsComments0 comments
Dating with SMAWhat has your experience been like while dating with SMA? Do you tend to date others with SMA or have you been in an inter-abled relationship before? What are some...Bookmark for laterReactions0reactionsComments3 replies