Discrimination SituationAround five years ago, I had a throbbing toothache. I had no idea what was wrong other than my face hurt and my tooth hurt. We had just moved to... By Jennifer Greer3 min readBookmark for later
Why Advocacy Is Important to the SMA CommunityFor families and people living with spinal muscular atrophy (SMA), health advocacy is a vital part of navigating the condition and improving lives. Advocating for SMA has a ripple effect... By Editorial Team 4 min readBookmark for later
Abilities ExpoI have been using my new powered wheelchair for about a year. When I am sitting for long periods of time, I can become uncomfortable. I reached out to my... By Mike Noon2 min readBookmark for later
Discrimination SituationAround five years ago, I had a throbbing toothache. I had no idea what was wrong other than my face hurt and my tooth hurt. We had just moved to... By Jennifer Greer3 min readBookmark for later
Why Advocacy Is Important to the SMA CommunityFor families and people living with spinal muscular atrophy (SMA), health advocacy is a vital part of navigating the condition and improving lives. Advocating for SMA has a ripple effect... By Editorial Team 4 min readBookmark for later
Abilities ExpoI have been using my new powered wheelchair for about a year. When I am sitting for long periods of time, I can become uncomfortable. I reached out to my... By Mike Noon2 min readBookmark for later
Discrimination SituationAround five years ago, I had a throbbing toothache. I had no idea what was wrong other than my face hurt and my tooth hurt. We had just moved to... By Jennifer Greer3 min readBookmark for later
Why Advocacy Is Important to the SMA CommunityFor families and people living with spinal muscular atrophy (SMA), health advocacy is a vital part of navigating the condition and improving lives. Advocating for SMA has a ripple effect... By Editorial Team 4 min readBookmark for later
Abilities ExpoI have been using my new powered wheelchair for about a year. When I am sitting for long periods of time, I can become uncomfortable. I reached out to my... By Mike Noon2 min readBookmark for later
Fears Of Flu and FeversAs summer eventually becomes fall and winter, bringing with it an increased risk of illness, those of us living with spinal muscular atrophy (SMA) face unique challenges. While we often... By Megan DeJarnett2 min readBookmark for laterReactions0reactionsComments0 comments
Health Literacy and SMAFor people with spinal muscular atrophy (SMA), health literacy is crucial. SMA is a genetic disorder that affects muscle strength and movement. Here is why health literacy matters, the impacts... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Welcome to SpinalMuscularAtrophy.net StoriesAt SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...Bookmark for laterReactions0reactionsComments0 comments
What type of advocacy are you currently involved in or hoping to be?We would love to hear and learn more about your advocacy efforts or goals. - Fundraising - Policy change - Research support - Community outreach - Other How did you...Bookmark for laterReactions0reactionsComments0 replies
