Spinal Muscular Atrophy Health Info & Community

alt=a woman gives a thumbs up from the sling of a patient lift.

Patient Lifts

Having the inability to raise oneself out of a power chair to go to the bathroom or to the bed can be daunting as one gets older and heavier, especially...

By Allie Williams

about 5 hours ago

alt=a woman looks hopefully at a floating cell in her hand

Hope is the word

Reliving our family stories brings back many memories of my son's journey with SMA. The emotions felt were painful, inspirational, scary, hurtful, and mostly sadness. Over the years people (mostly...

By Maryalice Noon

1 day ago

Three images of a woman who is slowly filling with bright color, depression, mood, optimistic, positive, happy, sad

The Dreaded "What-If's"

I’m a 44-year-old man living with spinal muscular atrophy type 3. Looking back now, I was pretty independent as a kid all the way through my late 20’s. Growing up...

By Mike Noon

6 days ago

Patient Lifts

Having the inability to raise oneself out of a power chair to go to the bathroom or to the bed can be daunting as one gets older and heavier, especially...

By Allie Williams

about 5 hours ago

Hope is the word

Reliving our family stories brings back many memories of my son's journey with SMA. The emotions felt were painful, inspirational, scary, hurtful, and mostly sadness. Over the years people (mostly...

By Maryalice Noon

1 day ago

The Dreaded "What-If's"

I’m a 44-year-old man living with spinal muscular atrophy type 3. Looking back now, I was pretty independent as a kid all the way through my late 20’s. Growing up...

By Mike Noon

6 days ago

Patient Lifts

Having the inability to raise oneself out of a power chair to go to the bathroom or to the bed can be daunting as one gets older and heavier, especially...

By Allie Williams

about 5 hours ago

Hope is the word

Reliving our family stories brings back many memories of my son's journey with SMA. The emotions felt were painful, inspirational, scary, hurtful, and mostly sadness. Over the years people (mostly...

By Maryalice Noon

1 day ago

The Dreaded "What-If's"

I’m a 44-year-old man living with spinal muscular atrophy type 3. Looking back now, I was pretty independent as a kid all the way through my late 20’s. Growing up...

By Mike Noon

6 days ago

Subscribe to Our Weekly Newsletters

Do you want more information about spinal muscular atrophy? Are you looking for support? Do you want to talk to others affected by this condition? If you answered “yes” to...

By Editorial Team

about 11 hours ago

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Asking for Medical Accommodations at Your Job

Having SMA and asking for help is unfortunately just a part of our disability. Although this may be difficult at times, we should never feel like a burden at home...

By Chaz Hayden

2 days ago

0 comments

Read recent articles

Welcome to SpinalMuscularAtrophy.net Stories

At SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...

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What do you look for when finding an SMA specialist?

Feel free to share your experience with SMA specialists, and what you look for when searching for the right doctor. ...

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How well do your friends and family understand your condition?

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