Removing Wisdom Teeth While Dealing with Respiratory IssuesAround the time I got my g-tube, I also realized that I was having problems with my jaw and teeth. After I had braces as a teenager, I never had...
Grips for a Wheelchair JoystickLiving with SMA, it often feels like we’re slowly losing strength or independence daily. Of course, now with the new medications that are available, some of us are seeing improvements...
Debunking Myths About Living With a Rare DiseaseSince spinal muscular atrophy is part of a rare disease, I’m taking this opportunity to recap the journey. To be able to share my experiences and stories for good is...
Removing Wisdom Teeth While Dealing with Respiratory IssuesAround the time I got my g-tube, I also realized that I was having problems with my jaw and teeth. After I had braces as a teenager, I never had...
Grips for a Wheelchair JoystickLiving with SMA, it often feels like we’re slowly losing strength or independence daily. Of course, now with the new medications that are available, some of us are seeing improvements...
Debunking Myths About Living With a Rare DiseaseSince spinal muscular atrophy is part of a rare disease, I’m taking this opportunity to recap the journey. To be able to share my experiences and stories for good is...
Removing Wisdom Teeth While Dealing with Respiratory IssuesAround the time I got my g-tube, I also realized that I was having problems with my jaw and teeth. After I had braces as a teenager, I never had...
Grips for a Wheelchair JoystickLiving with SMA, it often feels like we’re slowly losing strength or independence daily. Of course, now with the new medications that are available, some of us are seeing improvements...
Debunking Myths About Living With a Rare DiseaseSince spinal muscular atrophy is part of a rare disease, I’m taking this opportunity to recap the journey. To be able to share my experiences and stories for good is...
Summertime With SMAGood old summertime! How do you manage the summer with your SMA? Do you embrace the hot summer weather or prefer to stay indoors in the air conditioning? And what...Reactions0reactionsComments0 comments
Cure SMA Conference TipsI went to the Cure SMA Conference for the first time when I was 10 with my mom, dad, and grandparents (my mom's parents). To be honest, I was in...Reactions0reactionsComments1 comments
Featured forum Would you be willing to share your SMA caregiving story?We'd love to hear from you! Are you interested in connecting with us to interview about your SMA caregiving experience? If so, please email us at contact@spinalmuscularatrophy.net. You’re also welcome...Reactions0reactionsComments0 replies
Featured story Welcome to SpinalMuscularAtrophy.net StoriesAt SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...Reactions0reactionsComments0 comments
