My Beautiful GranddaughterOur granddaughter was born but misdiagnosed with type 1 SMA by the hospital and also the health care visitors. This was overlooked by all hospital professionals until she was 4...Reactions0reactionsComments3 comments
“I Have Chosen To Live With It Rather Than Just Survive”Hello My name is Rafael Garcia, and I want to share with you a little bit about myself. I am a 27-year-old writer, and I have been living with a...Reactions0reactionsComments3 comments
Living With SMA as a MomI am 35 years old. I'm a mum of 3, all by C sections. I have had SMA since I was born. I don't have a specific type it's just...Reactions0reactionsComments5 comments
Son With SMA BICD2 Gene MutationMy son was born with dislocated hips and deformed feet, its been a long road of appointments, tests etc. for diagnosis. This week, his diagnosis of a very rare form...Reactions0reactionsComments1 comments
Living With SMA Type 2 at 49You'd think, "OMGosh she’s bedridden or should be." I have been on my own since I was 28 and have had to many challenges. I was married that year and...Reactions0reactionsComments2 comments
Welcome to SpinalMuscularAtrophy.net StoriesAt SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...Reactions0reactionsComments0 comments