My Beautiful GranddaughterOur granddaughter was born but misdiagnosed with type 1 SMA by the hospital and also the health care visitors. This was overlooked...reactions3comments
“I Have Chosen To Live With It Rather Than Just Survive”Hello My name is Rafael Garcia, and I want to share with you a little bit about myself. I am a 27-year-old...reactions3comments
Living With SMA as a MomI am 35 years old. I'm a mum of 3, all by C sections. I have had SMA since I was born...reactions6comments
Son With SMA BICD2 Gene MutationMy son was born with dislocated hips and deformed feet, its been a long road of appointments, tests etc. for diagnosis. This...reactions2comments
Living With SMA Type 2 at 49You'd think, "OMGosh she’s bedridden or should be." I have been on my own since I was 28 and have had to...reactions5comments
Living My Life as a ComputerHello, everybody! You can call me Smurf because that was given to me from my friends that I have met over the...reactions6comments
Welcome to SpinalMuscularAtrophy.net StoriesAt SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge...reactionscomments