My Beautiful GranddaughterOur granddaughter was born but misdiagnosed with type 1 SMA by the hospital and also the health care visitors. This was overlooked by all hospital professionals until she was 4...reactions3comments
“I Have Chosen To Live With It Rather Than Just Survive”Hello My name is Rafael Garcia, and I want to share with you a little bit about myself. I am a 27-year-old writer, and I have been living with a...reactions3comments
Living With SMA as a MomI am 35 years old. I'm a mum of 3, all by C sections. I have had SMA since I was born. I don't have a specific type it's just...reactions5comments
Son With SMA BICD2 Gene MutationMy son was born with dislocated hips and deformed feet, its been a long road of appointments, tests etc. for diagnosis. This week, his diagnosis of a very rare form...reactions1comment
Living With SMA Type 2 at 49You'd think, "OMGosh she’s bedridden or should be." I have been on my own since I was 28 and have had to many challenges. I was married that year and...reactions2comments
Living My Life as a ComputerHello, everybody! You can call me Smurf because that was given to me from my friends that I have met over the years. Anyways, please excuse how I write this...reactions5comments
Welcome to SpinalMuscularAtrophy.net StoriesAt SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...reactionscomments
