Stories

Our granddaughter was born but misdiagnosed with type 1 SMA by the hospital and also the health care visitors. This was overlooked by all hospital professionals until she was 4...

Hello My name is Rafael Garcia, and I want to share with you a little bit about myself. I am a 27-year-old writer, and I have been living with a...

I am 35 years old. I'm a mum of 3, all by C sections. I have had SMA since I was born. I don't have a specific type it's just...

My son was born with dislocated hips and deformed feet, its been a long road of appointments, tests etc. for diagnosis. This week, his diagnosis of a very rare form...

You'd think, "OMGosh she’s bedridden or should be." I have been on my own since I was 28 and have had to many challenges. I was married that year and...

Hello, everybody! You can call me Smurf because that was given to me from my friends that I have met over the years. Anyways, please excuse how I write this...

At SpinalMuscularAtrophy.net, we believe that we are stronger together than we are alone. Living with spinal muscular atrophy can be a challenge, but the more we share and support one...