Last updated: June 2022
At SpinalMuscularAtrophy.net we empower patients and caregivers to take control of spinal muscular atrophy by providing a platform to learn, educate, and connect with peers and healthcare professionals.
Spinal muscular atrophy can have an enormous impact on the lives of patients and their loved ones. Whether you have just started experiencing the early signs and symptoms of spinal muscular atrophy or have been living with spinal muscular atrophy for years, SpinalMuscularAtrophy.net strives to provide you with tools and resources to help manage your disease. Although there is no cure for spinal muscular atrophy, we hope the information provided by patients, caregivers, and healthcare professionals at SpinalMuscularAtrophy.net will help improve your quality of life.
NOTE: Only you and your doctor can decide which treatments are right for you. Do not stop taking or change a treatment or prescription medicine, or the way you use them, without first consulting your doctor.
At SpinalMuscularAtrophy.net, we strive to provide you with the most accurate and relevant information. We use only trustworthy sources, such as the Food and Drug Administration (FDA), and peer-reviewed journals among others. We follow the principles of the Health On the Net Foundation to provide transparent and reliable health information.
SpinalMuscularAtrophy.net also features articles contributed by Physicians, Patient Advocates or other Healthcare Experts. We may also have “Guest Experts” who contribute articles on specific topics featured in the SpinalMuscularAtrophy.net Newsfeed. The author of each of these articles is clearly marked along with a link to the author’s profile. SpinalMuscularAtrophy.net does not edit these articles, as they represent the thoughts, opinions, and judgment of their authors.
We also encourage individuals impacted by spinal muscular atrophy to share their experiences with the community. We welcome your questions, comments, and suggestions! Please e-mail us at contact@SpinalMuscularAtrophy.net and we will respond as soon as possible.
Please note that our team hours are Monday-Friday 8:30AM - 5:30PM EST. While we may respond during the evenings and weekends, we cannot guarantee a response outside of our standard team hours.
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SpinalMuscularAtrophy.net is brought to you by Health Union, LLC, which does not manufacture, distribute, market or sell any product to cure, diagnose or prevent spinal muscular atrophy or any health condition. Health Union, LLC is an independent company and is not owned in whole or in part by any pharmaceutical, biotechnology, medical device or other healthcare services entity.