FeaturedWhat type of advocacy are you currently involved in or hoping to be?We would love to hear and learn more about your advocacy efforts or goals. - Fundraising - Policy change - Research support - Community outreach - Other How did you...Reactions0reactionsComments0 repliesAwareness
FeaturedCommon Myths & Misconceptions You've FacedWhat are some common myths & misconceptions you've faced living with SMA?...Reactions0reactionsComments4 repliesMyths & Misconceptions
Poliomyelitis My spine and neurological system was attacked by poliomyelitis at the age of 2 and 1/2 which left me paralyzed from the waist down. So for 63 years I've lived...Reactions0reactionsComments0 replies
Do you have experience wearing adaptive clothing?Have you maybe participated in an adaptive clothing fashion show? Do you have any favorite brands? Share them with our community!...Reactions0reactionsComments4 repliesTips & Advice
How do you advocate for spinal muscular atrophy/disability rightsPlease tell us what issues you advocate for and how....Reactions0reactionsComments0 replies
Advice for Your Younger SelfIn various aspects of life, such as your health journey, relationships, or other personal matters, we often realize that hindsight is 20/20. If given the chance, what is the one...Reactions0reactionsComments2 repliesTips & Advice
Making a home accessibleWhat home improvement would you do to make your home more accessible?...Reactions0reactionsComments2 repliesDisability
Have you ever attended an abilities exposition? If so, did you buy or find any useful products? Do you have anything else to share about the expo?...Reactions0reactionsComments0 repliesResources
What season do you prefer and why?Which season, summer, fall, winter, or spring, is the easiest and most enjoyable to live with SMA? Why?...Reactions0reactionsComments2 repliesCoping
Commode accessoriesSince I have sma I cannot sit down and get up on any chair that is lower than 24 inches. I have a query with respect to using public commode...Reactions0reactionsComments10 repliesAssistive EquipmentTravelTips & Advice