FeaturedWould you be willing to share your SMA caregiving story?We'd love to hear from you! Are you interested in connecting with us to interview about your SMA caregiving experience? If so, please email us at contact@spinalmuscularatrophy.net. You’re also welcome...Reactions0reactionsComments0 repliesCaregiving
FeaturedWhat type of advocacy are you currently involved in or hoping to be?We would love to hear and learn more about your advocacy efforts or goals. - Fundraising - Policy change - Research support - Community outreach - Other How did you...Reactions0reactionsComments5 repliesAwareness
Active todayCommunity Question: What would you buy?If you found $50 on the sidewalk and wanted to help yourself manage your SMA, what would you buy?...Reactions0reactionsComments0 repliesResources
You are more than someone with SMA. Who are you?SMA is an all-consuming condition and affects so much of our lives. Other than SMA, how do you describe yourself? What is your passion? How have you adapted living with...Reactions0reactionsComments5 repliesAwareness
Daily RoutinesWhat is your daily routine? Have you found that a routine helps you manage your SMA? Share below....Reactions0reactionsComments1 repliesTips & Advice
Pros and Cons of Power ChairsAre you new to using a power chair, or have you used one for a while? What are some things you love and some things you dislike about using a...Reactions0reactionsComments1 repliesAssistive Equipment
Self AdvocacyDo you consider yourself an advocate for yourself? If so, how did you start advocating? How has it impacted your life with SMA?...Reactions0reactionsComments1 repliesTips & Advice
Independence & SMAWhat would complete and total independence look like for you? How would you describe it? Do you have small every day wins that help you feel independent? Join the conversation....Reactions0reactionsComments3 repliesTips & Advice
Venting about dating sitesI have used them off and on for years now. I really hate how they are set up. Most of them prioritize photos to an extent that sometimes people have...Reactions0reactionsComments3 repliesDisabilityIntimacy & RelationshipsStigma
Do you have experience wearing adaptive clothing?Have you maybe participated in an adaptive clothing fashion show? Do you have any favorite brands? Share them with our community!...Reactions0reactionsComments6 repliesTips & Advice
Vacations & Travel with SMAA community member recently asked to learn more about how to air travel with SMA. Have you done lots of traveling before as someone with SMA? Does a loved one...Reactions0reactionsComments11 replies