FeaturedDoctors won’t address my smaSo, I was reading my mri report and it says I have mild to moderate paraspinal musculature atrophy. You can clearly see atrophy in my right arm. After bringing it...Reactions 0 reactions Comments2 repliesHealthcare TeamSymptomsTesting
FeaturedSMA Awareness Month Discussion Board: What do you wish others knew about SMA?If there was one thing you could tell the world about SMA, what would it be...Reactions 0 reactions Comments5 repliesAwarenessMyths & Misconceptions
Active yesterdayKeeping PositiveDo you have a special way to keep positive despite the challenges of SMA? What works for you...Reactions 0 reactions Comments0 repliesCopingMental Health
Teaching children about disabilitiesWhen you were a child, was it difficult to interact with non-disabled children? Did your school help introduce them to your disability? Was that helpful...Reactions 0 reactions Comments4 repliesDisabilityEducation & Schooling Friends & Family
What do you look for when finding an SMA specialist? Feel free to share your experience with SMA specialists, and what you look for when searching for the right doctor...Reactions 0 reactions Comments5 repliesSpecialists
You are more than someone with SMA. Who are you?SMA is an all-consuming condition and affects so much of our lives. Other than SMA, how do you describe yourself? What is your passion? How have you adapted living with...Reactions 0 reactions Comments0 repliesAwareness
Government ProgramsWhat government programs do you use to help you manage your SMA? Please share your state or country. Are you happy with the programs? What would you like to see?...Reactions 0 reactions Comments0 repliesAwarenessCostDisability
Accessible Housing TipsHave you made changes to make your house more accessible for someone with spinal muscular atrophy? If so, what changes have you made? Join the conversation...Reactions 0 reactions Comments0 repliesAssistive EquipmentTips & Advice
Accessible Summer FunShare your tips for accessible summer activities for kids OR adults. What do you do to enjoy the 'good old summertime...Reactions 0 reactions Comments0 repliesExercise & Activity
Recently Diagnosed Discussion BoardRecently diagnosed? Questions about treatment? Accessibility? Ask your questions here and our patient leaders will respond with their experiences...Reactions 0 reactions Comments0 repliesNewly Diagnosed
