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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

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What type of advocacy are you currently involved in or hoping to be?

We would love to hear and learn more about your advocacy efforts or goals. - Fundraising - Policy change - Research support - Community outreach - Other How did you...

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Tips for Cold/Flu Season

Getting sick is no fun! What're some tips and tricks you have to survive cold and flu season?...

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Staying Positive with SMA

Do you have a special way to keep positive despite the challenges of SMA? What works for you? Join the conversation below....

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Treatment Journey Update

Where are you on your treatment journey? Have you begun treatment or are you weighing your options? Do you have experience switching or stopping treatment? If you stopped, why did...

What has been the biggest obstacle you have overcome with SMA?

What was your greatest challenge, and how did you get through it?...

Support Animals

Do you have a support animal? Tell us about it, and we'd LOVE to see a picture!...

Poliomyelitis

My spine and neurological system was attacked by poliomyelitis at the age of 2 and 1/2 which left me paralyzed from the waist down. So for 63 years I've lived...

Do you have experience wearing adaptive clothing?

Have you maybe participated in an adaptive clothing fashion show? Do you have any favorite brands? Share them with our community!...

How do you advocate for spinal muscular atrophy/disability rights

Please tell us what issues you advocate for and how....

Advice for Your Younger Self

In various aspects of life, such as your health journey, relationships, or other personal matters, we often realize that hindsight is 20/20. If given the chance, what is the one...

Making a home accessible

What home improvement would you do to make your home more accessible?...

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