FeaturedActive 2 days agoTreatment Journey UpdateWhere are you on your treatment journey? Have you begun treatment or are you weighing your options? Do you have experience switching or stopping treatment? If you stopped, why did...Reactions 0 reactions Comments0 repliesTreatment
FeaturedI'd Like To Thank My Caregiver For _______________What would you say to your caregiver? What is something you're most grateful for when it comes to your relationship with them? Start and join the conversation below...Reactions 0 reactions Comments2 repliesHealthcare Team
Will you take our 2023 In America survey and help others understand the true impact of SMA?To better understand the patient experience and realities of SMA, we are fielding our 2023 SMA In America survey. By taking this anonymous survey, you can help everyone better understand...Reactions 0 reactions Comments0 repliesAwareness
A Question For The Community: Comfortable Bed Cushions "My wife has SMA and we are spending a fortune trying to find the right cushion for her to be able to sit. She started getting bedsores about a year...Reactions 0 reactions Comments0 repliesTips & Advice
A Challenge I've Recently Overcome Is ______________Fill in the blank. What is a challenge you've recently overcome while living with SMA? How would you encourage others who are currently facing challenges...Reactions 0 reactions Comments0 repliesTips & Advice
A Misconception I've Faced Living with SMA Is __________What misconceptions have people expressed to you about living with SMA? How did you approach them / prove them wrong? Join the conversation below...Reactions 0 reactions Comments0 repliesMyths & MisconceptionsTips & Advice
Diet and Nutrition Hello everyone, I need advice. I'm really struggling to figure out food. I don't see any recipes I like online that are soft for me and/or healthy. I want to...Reactions 0 reactions Comments2 replies
FeaturedA Letter to Your Younger Self What's one thing you would tell your younger self with SMA? Comment below and start the discussion...Reactions 0 reactions Comments0 replies
FeaturedStaying Positive with SMA Do you have a special way to keep positive despite the challenges of SMA? What works for you? Join the conversation below...Reactions 0 reactions Comments3 repliesCopingMental Health
Is this SMA?Besides having severe multilevel spinal stenosis, my MRI says There is a left paraspinal muscular atrophy. Multilevel degenerative changes with multilevel disc desiccation is seen. Is this SMA? Thanks! Alan...Reactions 0 reactions Comments2 repliesAwareness
