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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

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What type of advocacy are you currently involved in or hoping to be?

We would love to hear and learn more about your advocacy efforts or goals. - Fundraising - Policy change - Research support - Community outreach - Other How did you...

Featured

Common Myths & Misconceptions You've Faced

What are some common myths & misconceptions you've faced living with SMA?...

Poliomyelitis

My spine and neurological system was attacked by poliomyelitis at the age of 2 and 1/2 which left me paralyzed from the waist down. So for 63 years I've lived...

Do you have experience wearing adaptive clothing?

Have you maybe participated in an adaptive clothing fashion show? Do you have any favorite brands? Share them with our community!...

How do you advocate for spinal muscular atrophy/disability rights

Please tell us what issues you advocate for and how....

Advice for Your Younger Self

In various aspects of life, such as your health journey, relationships, or other personal matters, we often realize that hindsight is 20/20. If given the chance, what is the one...

Making a home accessible

What home improvement would you do to make your home more accessible?...

Have you ever attended an abilities exposition?

If so, did you buy or find any useful products? Do you have anything else to share about the expo?...

What season do you prefer and why?

Which season, summer, fall, winter, or spring, is the easiest and most enjoyable to live with SMA? Why?...

Commode accessories

Since I have sma I cannot sit down and get up on any chair that is lower than 24 inches. I have a query with respect to using public commode...

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