I'm 39 years old and live in Portugal. Was diagnosed with SMA type2 in London (Hammersmith Hospital) around my early teenager years, and at the age of 18 I had surgery to stop my scoliosis. After that I had very few good years (with minor limitations in my daily basis life) but lately I have felt severe neck weakness specially when walking, can't stand my neck straight (it bends back), which is very uncomfortable and gets painful sometimes too. It is affecting my quality of life hugely, so I was wondering if anyone has experienced anything similar or can help me. Unfortunately the disease is not very known in Portugal so it's not easy to find help/more informs here. Thank you.