FeaturedWill you take our In America survey and help others understand the true impact of SMA?To better understand the patient experience and realities of SMA, we are fielding our SMA In America survey. By taking this anonymous survey, you can help everyone better understand the...Reactions 0 reactions Comments0 repliesAwareness
Finding Kindness Do you find that others are easily willing to help you after they notice that you're in a wheelchair? If you've experienced the opposite, how have you handled situations where...Reactions 0 reactions Comments0 repliesAwareness
Accessibility EtiquetteWhat guidelines need to be written in an “accessibility etiquette” guide? What drives you crazy about the way people interact with you as someone with a disability? How do you...Reactions 0 reactions Comments2 repliesAwarenessFriends & FamilyMyths & Misconceptions
Awareness Month 2023 Spotlight: Your SMA Story What brings you to our community? Do you identify has a caregiver, patient, or health care provider? Use this forum space to connect with others. Join the conversation!...Reactions 0 reactions Comments0 repliesAwareness
Body ImageWhat concerns do you have about your body image or perception? Is your perception accurate or do you have an image of yourself from a younger time? How does disability...Reactions 0 reactions Comments0 repliesAwareness
Will you take our 2023 In America survey and help others understand the true impact of SMA?To better understand the patient experience and realities of SMA, we are fielding our 2023 SMA In America survey. By taking this anonymous survey, you can help everyone better understand...Reactions 0 reactions Comments0 repliesAwareness
Is this SMA?Besides having severe multilevel spinal stenosis, my MRI says There is a left paraspinal muscular atrophy. Multilevel degenerative changes with multilevel disc desiccation is seen. Is this SMA? Thanks! Alan...Reactions 0 reactions Comments2 repliesAwareness
SMA Awareness Month Discussion Board: What do you wish others knew about SMA?If there was one thing you could tell the world about SMA, what would it be?...Reactions 0 reactions Comments6 repliesAwarenessMyths & Misconceptions
You are more than someone with SMA. Who are you?SMA is an all-consuming condition and affects so much of our lives. Other than SMA, how do you describe yourself? What is your passion? How have you adapted living with...Reactions 0 reactions Comments0 repliesAwareness
Government ProgramsWhat government programs do you use to help you manage your SMA? Please share your state or country. Are you happy with the programs? What would you like to see?...Reactions 0 reactions Comments0 repliesAwarenessCostDisability