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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

Active 4 days ago

You are more than someone with SMA. Who are you?

SMA is an all-consuming condition and affects so much of our lives. Other than SMA, how do you describe yourself? What is your passion? How have you adapted living with...

Featured

What type of advocacy are you currently involved in or hoping to be?

We would love to hear and learn more about your advocacy efforts or goals. - Fundraising - Policy change - Research support - Community outreach - Other How did you...

What has been the biggest obstacle you have overcome with SMA?

What was your greatest challenge, and how did you get through it?...

Will you take our In America survey and help others understand the true impact of SMA?

The In America survey is now closed. To better understand the patient experience and realities of SMA, we are fielding our SMA In America survey. By taking this anonymous survey...

Finding Kindness

Do you find that others are easily willing to help you after they notice that you're in a wheelchair? If you've experienced the opposite, how have you handled situations where...

Accessibility Etiquette

What guidelines need to be written in an “accessibility etiquette” guide? What drives you crazy about the way people interact with you as someone with a disability? How do you...

Awareness Month 2023 Spotlight: Your SMA Story

What brings you to our community? Do you identify has a caregiver, patient, or health care provider? Use this forum space to connect with others. Join the conversation!...

Body Image

What concerns do you have about your body image or perception? Is your perception accurate or do you have an image of yourself from a younger time? How does disability...

Will you take our 2023 In America survey and help others understand the true impact of SMA?

To better understand the patient experience and realities of SMA, we are fielding our 2023 SMA In America survey. By taking this anonymous survey, you can help everyone better understand...

Is this SMA?

Besides having severe multilevel spinal stenosis, my MRI says There is a left paraspinal muscular atrophy. Multilevel degenerative changes with multilevel disc desiccation is seen. Is this SMA? Thanks! Alan...

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