Would you be willing to share your SMA caregiving story?

We'd love to hear from you! Are you interested in connecting with us to interview about your SMA caregiving experience? If so, please email us at contact@spinalmuscularatrophy.net.

You’re also welcome to share your caregiving journey in this forum.
-What is your role (parent, spouse, etc.)?
-When were they diagnosed (year & age)?
-What was the diagnosis journey like?
-Their treatment experience?
-What is the most challenging part about being a caregiver?
-What is the best thing about being one?
-Is there anything else you'd like to share?