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How do you find balance?

When you're ill for a long time and can't stick to the things you love doing, how do you manage your mental health? Do you find it difficult to balance the emotional and physical aspects of SMA?

Share your advice with the community.

  1. When I’ve been sick for a long time, which is usually everytime I get sick (it lingers) I have a hard time accepting that I’ve lost mobility. I get weaker when I get sick and then it’s like starting over from scratch again. It’s mentally draining but I tell myself that it’ll get better a little at a time. It took all that time for me to be sick, it’s going to take time for my body to bounce back, but it will bounce back to my normal level of weak soon. Having that in my mind helps me feel okay with being slower at doing things or tiring easily after recouping from an illness.

    1. I need help with my s m a

      1. Can someone help me with my S.M.A

        1. Thanks for your question! It’s a tough one to answer, because treatments can work differently for different people, so it’s hard to say if there is a “best” treatment. While you may get feedback from the community on what has worked for them as individuals, we always encourage people to speak with their doctor or specialist, if they haven’t already, about how any treatment may work for them specifically. Additionally, I thought this page on treatments might be helpful as well. We commend you on advocating for yourself and looking for this information! Please keep us posted on how you’re doing! Warmly, kathy (Team Member)

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