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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

Independence & SMA

What would complete and total independence look like for you? How would you describe it? Do you have small every day wins that help you feel independent? Join the conversation....

Venting about dating sites

I have used them off and on for years now. I really hate how they are set up. Most of them prioritize photos to an extent that sometimes people have...

Do you have experience wearing adaptive clothing?

Have you maybe participated in an adaptive clothing fashion show? Do you have any favorite brands? Share them with our community!...

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What type of advocacy are you currently involved in or hoping to be?

We would love to hear and learn more about your advocacy efforts or goals. - Fundraising - Policy change - Research support - Community outreach - Other How did you...

Vacations & Travel with SMA

A community member recently asked to learn more about how to air travel with SMA. Have you done lots of traveling before as someone with SMA? Does a loved one...

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Thank A Healthcare Professional Discussion Board

Do you have a favorite doctors/specialist? Maybe someone who went above and beyond for you during a hospital stay? Give them a shout out and tell us their story....

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I'd Like To Thank My Caregiver For _______________

What would you say to your caregiver? What is something you're most grateful for when it comes to your relationship with them? Start and join the conversation below....

Do you know a solution for those health issues?

Hey there, life with SMA has never been easy, but since 2 years I´m having severe problems and need your advice... It all started with my first Covid Vaccination (Astra...

Food alternatives

I am a SMA type 3 person and onset started around age 13. I am currently 38 and ambulatory, though it is annoying and painful when I walk for long...

How to get up from ground after falling?

Ever since I lost my ability to get up from the floor unassisted I am always really cautious while going outside and roaming about because if I fall down I...

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