FeaturedPreventing Pressure Injuries for wheelchair boundHi SMA community, I am a caregiver for my 70yr old father diagnosed with SMA 3. He is currently receiving Spinraza. Our biggest challenge in keeping him healthy is preventing...Reactions 0 reactions Comments2 replies
FeaturedCommon Myths & Misconceptions You've FacedWhat are some common myths & misconceptions you've faced living with SMA...Reactions 0 reactions Comments0 repliesMyths & Misconceptions
Active 7 days agoVacations & Travel with SMAA community member recently asked to learn more about how to air travel with SMA. Have you done lots of traveling before as someone with SMA? Does a loved one...Reactions 0 reactions Comments4 repliesTips & AdviceTravel
Active 8 days agoAre You in an Interabled Relationship?What is your experience like being in an interabled relationship? If you need inspiration, read Suzanne's perspective: https://spinalmuscularatrophy.net/living/interabled-relationships Share below...Reactions 0 reactions Comments0 repliesIntimacy & Relationships
Active 8 days agoAccessibility ChallengesHave you faced accessibility challenges lately? Maybe when trying to go out and do something social? We want to hear your stories here. Share below...Reactions 0 reactions Comments0 repliesDisabilityTips & Advice
Managing DepressionI want to understand how personal with SMA cope with mental depression when you lose the ability to do certain things which you were able to do previously? for example...Reactions 0 reactions Comments0 repliesCopingDepression
Food alternativesI am a SMA type 3 person and onset started around age 13. I am currently 38 and ambulatory, though it is annoying and painful when I walk for long...Reactions 0 reactions Comments0 repliesDiet & Nutrition
May is Mental Health Awareness Month!It's ok to not be ok. It's valid to feel all the highs and lows that life hands you, especially when living with a rare disease. How has your mental...Reactions 0 reactions Comments0 repliesMental Health
FeaturedDating with SMAWhen dating with SMA, what are some activities one can do other than going out to dinner? The diverse the list the better! Share below...Reactions 0 reactions Comments2 repliesIntimacy & RelationshipsTips & Advice
Do you know a solution for those health issues?Hey there, life with SMA has never been easy, but since 2 years I´m having severe problems and need your advice... It all started with my first Covid Vaccination (Astra...Reactions 0 reactions Comments1 repliesMental HealthSleepSymptoms
Self pleasure tipsHello. Please delete if this isn't appropriate, but I was just curious what y'all do to help yourself when you're in the mood...Reactions 0 reactions Comments0 repliesIntimacy & Relationships
