I want to understand how personal with SMA cope with mental depression when you lose the ability to do certain things which you were able to do previously?
for example, before the pandemic if I were to fall down accidentally while walking, I was able to prostrate and get up on my own from the floor. But after the pandemic, and being stuck indoors, I have lost my ability to get up from the floor, and I have also lost my capacity to get up from any toilet seat or chairs which are lower than 24 inches in height from the floor.
At home it is not an issue since I have modified my toilet with a add on toilet seat raiser and computer chair with a seat booster. I have issue whenever I go out, how do people cope with those situations?
Over the past two or three years I have also started forgetting a lot and I am not sure why and that leads to more depression as well.
Sometime I feel too worried as to where this might lead to in 5 or 10 years from now. The only thing I could say to myself is the sky is not falling on my head right now and move on. Are there anything else which I could do to improve my situation.