Wheelchair Recommendations and Favorite FeaturesAs someone with spinal muscular atrophy, I understand the importance of selecting the correct wheelchair. Not only is it a huge financial...reactions1comment
Tips for a Successful Night Out as a Wheelchair UserGoing out can be nerve-wracking for anyone. But when you're a wheelchair user with spinal muscular atrophy, the stress can multiply. From...reactions3comments
The Ultimate SMA Gift Guide for Adults and TeensNo matter the time of year, we can always use a thoughtful gift. Here’s a guide to gifts that are accessible, thoughtful...reactions4comments
The Odd Mom OutI had SMA type 2 and became a mother at the age of 25. I then became a mother for a second...reactionscomments
Let’s Talk About Mental HealthHow do you find yourself managing your mental health on a day-to-day basis? Please join the conversation. Below are comments from SpinalMuscularAtrophy.net...reactions1comment
My Story of Coping with Constant PEG Tube PainNot long ago, to make a long story short, I had a bunch of GI issues. The GI team decided to give...reactions2comments
My Tips for Staying Hydrated as a Wheelchair UserNavigating life as a wheelchair user with spinal muscular atrophy has its unique set of challenges. Among those, something as seemingly simple...reactions1comment
Creative Ways to Organize Medical Equipment at HomeGrowing up, I never felt embarrassed or ashamed of the extensive medical equipment that was on display in my bedroom. A BiPAP...reactions2comments
My Journey to Create an Accessible Gaming SetupRecently I went on a search to find an accessible hobby that didn’t include technology or staring at a screen. I didn’t...reactions6comments
My Thoughts on Treatment - Both Good and BadThe term that has always been used in the SMA community prior to treatment was a cure. Fight for the Cure, Cure...reactions2comments
Using Computer Assistive Technology With Spinal Muscular AtrophyComputer assistive devices and strategies can help people with SMA communicate, maintain more independence, and potentially carry out job duties. As more...reactionscomments
Things I Wish People KnewToday I wanted to talk about SMA (spinal muscular atrophy). Most folks out there aren’t exactly experts on it, so I want...reactions2comments
Finding Adaptive Clothing for SMA: Community Tips and TricksWhen living with spinal muscular atrophy (SMA), finding comfortable, functional, and stylish clothes can be a significant challenge. See some tips below...reactionscomments
First Grade-How My Advocacy StartedI have spinal muscular atrophy (SMA), a condition that affects my muscles and mobility. But the amazing part is that I went...reactionscomments
Rocking the Solo LifeWell, folks! It's been a wild ride – a decade of liberation from marriage and an interesting tango with spinal muscular atrophy...reactions1comment
The Frustration of "Inaccessible" Accessibility“Come visit this awesome new restaurant,” my friends begged me. “It’s got great Yelp reviews and we’ve wanted to visit it.” “This...reactions6comments
The Evolution of Adaptive Showering EquipmentMany people with disabilities, like spinal muscular atrophy, may struggle with self-care necessities, especially bathing/showering when access is hard. My situation was...reactions2comments
My Accessible Home Adventure With SMAOn Valentine’s Day in 2019, my life was pushed into a tailspin. I was a full-time college student and I was renting a...reactions1comment
Staying Mentally HealthyI’m in my mid 40’s and I find it encouraging that mental health has become more out in the open. I know...reactionscomments
When Your Significant Other Becomes Your PCASuzanne and I met over 6 years ago. We both had an attraction to each other. Our friendship grew into a relationship...reactionscomments
