Looking For the Little Joys with SMARecently, I began going to see a therapist for my depression and anxiety. I was diagnosed with major manic depressive disorder. This means when I’m down, I’m really down. Therapy... By Jennifer Greer3 min readBookmark for laterReactions0reactionsComments0 comments
When My Wheelchair Gets Damaged Beyond RepairUsually, a situation like this would leave me in a very dark place. A few weeks ago, we were in a car accident, and I thank God every day that... By Kellie Cusack2 min readBookmark for laterReactions0reactionsComments0 comments
SMA Impacts Job HuntingLast year, I decided I wanted to begin the process of looking for a job. Up until this point, I’d never worked a steady job before in or outside of... By Jennifer Greer3 min readBookmark for laterReactions0reactionsComments0 comments
Financial Independence, The Food EditionLet’s talk about financial independence. As you know from my first article here, financial freedom and independence are so hard. With Supplemental Security Income (SSI) limits, I can feel trapped... By Kellie Cusack2 min readBookmark for laterReactions0reactionsComments0 comments
My Journey to BiPapTwo years ago, I was hit with some bewildering symptoms. A loud roaring noise invaded my left ear during a visit to my sister in Maryland over the summer. I... By Jennifer Greer4 min readBookmark for laterReactions0reactionsComments0 comments
Navigating Medical Procedures With SMAIf you live with spinal muscular atrophy (SMA) of any type, then you know how difficult it can be to have medical procedures done. There’s a lot of logistics and... By Jennifer Greer3 min readBookmark for laterReactions0reactionsComments0 comments
The Game Changer-BiPAPI remember this day well. The start of an unbelievable journey. Who would have thought I needed to wear a BiPAP? It has never come to my mind. I wore... By Ainaa Farhanah3 min readBookmark for laterReactions0reactionsComments0 comments
School Safety Drills as a Student with SMADuring my school years, active participation in safety drills, including fire and tornado drills, was mandated. For the average able-bodied child, these drills seemed straightforward. When the alarm sounded, students... By Jennifer Greer3 min readBookmark for laterReactions0reactionsComments0 comments
Navigating Large Crowds In A WheelChair: My First Concert ExperienceI have anxiety about being surrounded by large groups or crowds of people. But when Taylor Swift announced her 1989 World Tour was coming to Maryland a few years ago... By Jennifer Greer3 min readBookmark for laterReactions0reactionsComments0 comments
Nighttime Tips and TricksBased on my friend Allie’s article about her morning routine, I thought I'd offer my nighttime routine. Here are some nightly tips and tricks that really help me. I would... By Kellie Cusack2 min readBookmark for laterReactions0reactionsComments0 comments
First Home RenovationBuying a home is an exciting adventure. However, when you are dealing with a disability like spinal muscular atrophy, you know that you will need to make some renovations. If... By Mike Noon2 min readBookmark for laterReactions0reactionsComments0 comments
My Evrysdi Journey So FarOn December 23, 2016, I celebrated my birthday, marking a momentous occasion: the FDA had approved Spinraza as the inaugural treatment for spinal muscular atrophy (SMA). I recall lying in... By Jennifer Greer4 min readBookmark for laterReactions0reactionsComments0 comments
Traveling Shower HacksOne of the most common questions I get asked regarding my frequent traveling is how I shower. Of course, this depends on our lodging situation, whether it be a hotel... By Megan DeJarnett3 min readBookmark for laterReactions0reactionsComments0 comments
Having Able-Bodied Siblings As Someone With SMAI am the youngest of my siblings at twenty nine years old. I have two step-brothers and one step-sister. Due to genetics, I am the only one in my family... By Jennifer Greer3 min readBookmark for laterReactions0reactionsComments1 comments
Learning the Hard Way: Ensuring Safety for Students with DisabilitiesWhen I was in school, I had a personal aide who accompanied me every day and followed me through several grades. She knew all about me, my specific needs, and... By Jennifer Greer4 min readBookmark for laterReactions0reactionsComments0 comments
My Process For A New WheelchairHello all! Today I wanted to share my wheelchair stories and my tips for getting a new one! Since my family can't afford a van, (why are they so ridiculously... By Kellie Cusack3 min readBookmark for laterReactions0reactionsComments0 comments
Fears Of Flu and FeversAs summer eventually becomes fall and winter, bringing with it an increased risk of illness, those of us living with spinal muscular atrophy (SMA) face unique challenges. While we often... By Megan DeJarnett2 min readBookmark for laterReactions0reactionsComments0 comments
Health Literacy and SMAFor people with spinal muscular atrophy (SMA), health literacy is crucial. SMA is a genetic disorder that affects muscle strength and movement. Here is why health literacy matters, the impacts... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Discrimination SituationAround five years ago, I had a throbbing toothache. I had no idea what was wrong other than my face hurt and my tooth hurt. We had just moved to... By Jennifer Greer3 min readBookmark for laterReactions0reactionsComments0 comments
The Advocacy Issues That Matter To MeI feel like I've mentioned my advocacy here and there, and I'm sure we all know the reason behind why it's important; for us disabled people to have equal rights... By Kellie Cusack3 min readBookmark for laterReactions0reactionsComments0 comments