Things We Learned as ParentsMike’s brother, Dan, was a competitive runner since fourth grade and he was Dan’s biggest fan and supporter. By high school, Mike...reactions1comment
Helping Others Helps MeLiving with a disability like spinal muscular atrophy can be difficult at times. My 46 years of experience have taught me some...reactionscomments
Dealing With GuiltGuilt can be rough to deal with. Everyone deals with guilt on some level. I’m sure my parents and siblings have dealt...reactionscomments
The Weight of Guilt: My Struggle With SMA and its Impact on CaregiversI’ve talked about the guilt I deal with in regards to the amount of work people need to exert in order to...reactions3comments
Navigating the Pros and Cons of Owning an Accessible VanI feel as though having a disability is a constant balancing act of freedom and cost. Owning an accessible van can be...reactions10comments
Independence and AccessibilityAccessibility and independence go hand-in-hand but often times people do not realize that they rely on each other. I have spoken with...reactions7comments
My Top Travel TipsThe holidays are upon us. If you’re like me, and you are going to be traveling to other people’s homes for the...reactions1comment
The Joy of Finding My Four-Legged SupportLife has its moments – some challenging, some joyful. As a full-time electric wheelchair user with limited arm mobility due to spinal...reactions1comment
The Frustrations of Broken EquipmentWhen living with a disability like spinal muscular atrophy, we heavily rely on equipment that gives us our independence. This freedom is...reactions2comments
How Expensive Is That Minivan?I want to talk about the extra expenses for anyone who deals with a physical disability. Dealing with the physical aspects of...reactions4comments
My Journey to Becoming A Mom in a Wheelchair: Part 1Finding the right doctor. As a little 4-year-old girl, I used to pretend I was pregnant. I would stuff a pillow up...reactionscomments
Transitioning To Adulthood with SMAI was raised by two amazing parents who truly fought for the best for their children, both disabled and not. Like I...reactionscomments
Parenting From a WheelchairBeing a mother is an adventure in itself, but when you add two young children and a wheelchair to the mix, things...reactions1comment
Embracing Independence: My Journey with IncontinenceGrowing up with spinal muscular atrophy (SMA) and relying on a wheelchair, my daily life was an intricate dance of navigating the...reactions2comments
Getting Comfortable In My StyleLiving with spinal muscular atrophy (SMA) brings its own set of challenges. Some challenges are glaringly obvious. Others play out behind the...reactionscomments
The Importance of Wearing Your Seatbelt with SMAIn my younger days, donning my belt each morning was a steadfast ritual. It was something I did everyday, like brushing my...reactionscomments
Perks of Living With SMASome might think living with spinal muscular atrophy (SMA) is all bad. That life is full of doom and gloom, but I...reactions4comments
Things That Make Me Angry About SMAHaving a disability like spinal muscular atrophy is extremely challenging. Every day is a battle between my body and my mind. Frankly...reactionscomments
My Experience With SMA & AnesthesiaEvery two years I have to get minor outpatient surgery to change my peg g-tube. This unfortunately has to be performed in...reactionscomments
When Your Equipment BreaksMy worst nightmare is the thought of any of my equipment breaking at a time when I need it the most. Whether...reactionscomments
