Fears Of Flu and Fevers

As summer eventually becomes fall and winter, bringing with it an increased risk of illness, those of us living with spinal muscular atrophy (SMA) face unique challenges. While we often take extra precautions to stay healthy, the reality is that exposure to sickness is sometimes unavoidable. This could be due to a caretaker or family member falling ill, presenting numerous opportunities for us to catch something.

Common illnesses have a mental impact

From personal experience, I've battled various colds, pneumonia, and even Covid. Fortunately, I've managed to recover each time, but the mental impact of these illnesses has grown significantly in recent years.

I've noticed a rising anxiety as the fall and winter seasons approach, stemming from the fear of getting sick. If you experience similar fears, know that you're not alone. Many of us with SMA, especially those with weakened lungs or compromised immune systems, feel this seasonal anxiety due to the increased prevalence of flu and other illnesses.

Fear and anxiety come along with the illnesses

It's essential to acknowledge and validate these concerns. While it's common to feel this way, we mustn't let fear dominate our lives. Instead, we can channel it into making informed decisions and establishing healthy boundaries during the sickness-prone seasons.

In my journey, I've identified factors contributing to my anxiety, like excessive caffeine, and addressed them. I've also taken proactive steps such as consuming additional vitamins and immune boosters, actions that help me feel I'm doing my part in taking care of my body.

Asking people if they are sick

Communication is crucial as the season draws near, especially when planning gatherings with friends and family. Initially, I felt self-conscious about inquiring if someone was sick or if a family member had fallen ill. However, once I began sharing my concerns and explaining my boundaries, I found that others were very understanding and respected my decisions to cancel or reschedule gatherings as needed.

Though we can't control every aspect of getting sick, many factors remain within our grasp. We can take our vitamins, set our boundaries, and most importantly, be kind to ourselves regarding our fears about illness. By doing so, we not only look after our physical health but also our mental well-being.

Remember, living with SMA does present additional challenges, particularly during times when illnesses are more common. Yet, by taking proactive steps and communicating openly with those around us, we can navigate these challenges more effectively. Our fears and anxieties are valid, but they don't have to define our experience of the winter months. Instead, let's use them as tools to foster self-care and understanding in our communities.