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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

A Question For The Community: Comfortable Bed Cushions

"My wife has SMA and we are spending a fortune trying to find the right cushion for her to be able to sit. She started getting bedsores about a year...

What season do you prefer and why?

Which season, summer, fall, winter, or spring, is the easiest and most enjoyable to live with SMA? Why?...

Advice for Your Younger Self

In various aspects of life, such as your health journey, relationships, or other personal matters, we often realize that hindsight is 20/20. If given the chance, what is the one...

Poliomyelitis

My spine and neurological system was attacked by poliomyelitis at the age of 2 and 1/2 which left me paralyzed from the waist down. So for 63 years I've lived...

Back Swimming

Recently my son, his brother and I went back to hydrotherapy after 1 and half years. It was an amazing experience. We are hoping to do it every weekend....

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Would you be willing to share your SMA caregiving story?

We'd love to hear from you! Are you interested in connecting with us to interview about your SMA caregiving experience? If so, please email us at contact@spinalmuscularatrophy.net. You’re also welcome...

Making a home accessible

What home improvement would you do to make your home more accessible?...

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Staying Positive with SMA

Do you have a special way to keep positive despite the challenges of SMA? What works for you? Join the conversation below....

What has been the biggest obstacle you have overcome with SMA?

What was your greatest challenge, and how did you get through it?...

What makes a great present for you?

🎁 What would you like to receive as a disabled person? What would make your life easier? 🎁...

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