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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

Do you know a solution for those health issues?

Hey there, life with SMA has never been easy, but since 2 years I´m having severe problems and need your advice... It all started with my first Covid Vaccination (Astra...

Food alternatives

I am a SMA type 3 person and onset started around age 13. I am currently 38 and ambulatory, though it is annoying and painful when I walk for long...

How to get up from ground after falling?

Ever since I lost my ability to get up from the floor unassisted I am always really cautious while going outside and roaming about because if I fall down I...

SMA 3 with handweakness

Hello My son started developing a weak grip about 16 months ago . He said when he was lifting weights at rowing training he couldn’t get a grip and his...

SMA & Technology

Do you have smart technology that you find yourself relying heavily on in your day to day life? Tell our SMA community all about it!...

Getting Creative: Lack of Assistive Equipment

Do you have any recent experiences of having to get creative when there is a lack of assistive equipment, or your circumstances don't allow you to access the equipment that...

A Question For The Community: Comfortable Bed Cushions

"My wife has SMA and we are spending a fortune trying to find the right cushion for her to be able to sit. She started getting bedsores about a year...

What season do you prefer and why?

Which season, summer, fall, winter, or spring, is the easiest and most enjoyable to live with SMA? Why?...

Advice for Your Younger Self

In various aspects of life, such as your health journey, relationships, or other personal matters, we often realize that hindsight is 20/20. If given the chance, what is the one...

Poliomyelitis

My spine and neurological system was attacked by poliomyelitis at the age of 2 and 1/2 which left me paralyzed from the waist down. So for 63 years I've lived...

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