Resources for AssistanceWhat non-profit organizations have you found helpful? What services do they provide (financial, caregiving, other supportive services...Reactions 0 reactions Comments0 repliesCost
FeaturedThank A Healthcare Professional Discussion BoardDo you have a favorite doctors/specialist? Maybe someone who went above and beyond for you during a hospital stay? Give them a shout out and tell us their story...Reactions 0 reactions Comments1 repliesHealthcare Team
Barriers with SMAWhat do you feel are your greatest barriers living with SMA? How do you navigate these barriers? Start the conversation and let our community member join in...Reactions 0 reactions Comments0 repliesMental Health
FeaturedTeaching Children About Disabilities Discussion Board When you were a child, was it difficult to interact with non-disabled children? Did your school help introduce them to your disability? Was that helpful? Read an article about navigating...Reactions 0 reactions Comments4 repliesDisabilityEducation & Schooling Friends & Family
SMA Specialist Discussion Board: What Do You Look For? Feel free to share your experience with SMA specialists, and what you look for when searching for the right doctor...Reactions 0 reactions Comments5 repliesSpecialists
FeaturedDoctors won’t address my smaSo, I was reading my mri report and it says I have mild to moderate paraspinal musculature atrophy. You can clearly see atrophy in my right arm. After bringing it...Reactions 0 reactions Comments2 repliesHealthcare TeamSymptomsTesting
You are more than someone with SMA. Who are you?SMA is an all-consuming condition and affects so much of our lives. Other than SMA, how do you describe yourself? What is your passion? How have you adapted living with...Reactions 0 reactions Comments0 repliesAwareness
Government ProgramsWhat government programs do you use to help you manage your SMA? Please share your state or country. Are you happy with the programs? What would you like to see?...Reactions 0 reactions Comments0 repliesAwarenessCostDisability
Accessible Housing TipsHave you made changes to make your house more accessible for someone with spinal muscular atrophy? If so, what changes have you made? Join the conversation...Reactions 0 reactions Comments0 repliesAssistive EquipmentTips & Advice
Accessible Summer FunShare your tips for accessible summer activities for kids OR adults. What do you do to enjoy the 'good old summertime...Reactions 0 reactions Comments0 repliesExercise & Activity
