What season do you prefer and why?Which season, summer, fall, winter, or spring, is the easiest and most enjoyable to live with SMA? Why?...Reactions0reactionsComments3 repliesCoping
Advice for Your Younger SelfIn various aspects of life, such as your health journey, relationships, or other personal matters, we often realize that hindsight is 20/20. If given the chance, what is the one...Reactions0reactionsComments3 repliesTips & Advice
Poliomyelitis My spine and neurological system was attacked by poliomyelitis at the age of 2 and 1/2 which left me paralyzed from the waist down. So for 63 years I've lived...Reactions0reactionsComments1 replies
Back SwimmingRecently my son, his brother and I went back to hydrotherapy after 1 and half years. It was an amazing experience. We are hoping to do it every weekend....Reactions0reactionsComments2 replies
FeaturedWould you be willing to share your SMA caregiving story?We'd love to hear from you! Are you interested in connecting with us to interview about your SMA caregiving experience? If so, please email us at contact@spinalmuscularatrophy.net. You’re also welcome...Reactions0reactionsComments0 repliesCaregiving
Making a home accessibleWhat home improvement would you do to make your home more accessible?...Reactions0reactionsComments3 repliesDisability
FeaturedStaying Positive with SMA Do you have a special way to keep positive despite the challenges of SMA? What works for you? Join the conversation below....Reactions0reactionsComments6 repliesCopingMental Health
What has been the biggest obstacle you have overcome with SMA?What was your greatest challenge, and how did you get through it?...Reactions0reactionsComments1 repliesCopingAwareness
What makes a great present for you?🎁 What would you like to receive as a disabled person? What would make your life easier? 🎁...Reactions0reactionsComments1 repliesAssistive Equipment
Which assistive devices have you found most helpful? Please share your experience with spinal muscular atrophy assistive devices. ...Reactions0reactionsComments4 repliesAssistive Equipment