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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

Back Swimming

Recently my son, his brother and I went back to hydrotherapy after 1 and half years. It was an amazing experience. We are hoping to do it every weekend....

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Would you be willing to share your SMA caregiving story?

We'd love to hear from you! Are you interested in connecting with us to interview about your SMA caregiving experience? If so, please email us at contact@spinalmuscularatrophy.net. You’re also welcome...

Making a home accessible

What home improvement would you do to make your home more accessible?...

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Staying Positive with SMA

Do you have a special way to keep positive despite the challenges of SMA? What works for you? Join the conversation below....

What has been the biggest obstacle you have overcome with SMA?

What was your greatest challenge, and how did you get through it?...

What makes a great present for you?

🎁 What would you like to receive as a disabled person? What would make your life easier? 🎁...

Which assistive devices have you found most helpful?

Please share your experience with spinal muscular atrophy assistive devices. ...

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Common Myths & Misconceptions You've Faced

What are some common myths & misconceptions you've faced living with SMA?...

Preventing Pressure Injuries for wheelchair bound

Hi SMA community, I am a caregiver for my 70yr old father diagnosed with SMA 3. He is currently receiving Spinraza. Our biggest challenge in keeping him healthy is preventing...

SMA Specialist Discussion Board: What Do You Look For?

Feel free to share your experience with SMA specialists, and what you look for when searching for the right doctor. ...

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