Recently Diagnosed Discussion BoardRecently diagnosed? Questions about treatment? Accessibility? Ask your questions here and our patient leaders will respond with their experiences...Reactions 0 reactions Comments0 repliesNewly Diagnosed
Resources What resources are you aware of that could help people with spinal muscular atrophy? Websites? Organizations? Books? Feel free to share here...Reactions 0 reactions Comments0 repliesResources
Caregiving Are you a caregiver for someone with spinal muscular atrophy? Share your story and experiences here...Reactions 0 reactions Comments0 repliesCaregiving
Traveling with spinal muscular atrophyHave you traveled before with SMA? What has your experience been like? Do you have tips for someone who is curious to travel / travel more often? If not, why...Reactions 0 reactions Comments0 repliesTravel
Mental Health MonthMay is Mental Health Month. Do you feel that spinal muscular atrophy has an affect on your mental health? Share your experience with managing mental health with our spinal muscular...Reactions 0 reactions Comments0 repliesCopingMental HealthTips & Advice
Advice: Younger patients with SMAWhat advice would you tell your younger self? Are there things you wish someone would've told you...Reactions 0 reactions Comments0 repliesTips & Advice
Switching from Spinraza to RisdiplamHi, Apologies if this has been discussed.. new to forum. I have 2 children with SMA 3, age 13 and 11. They have been on Spinraza for 2 years. Considering...Reactions 0 reactions Comments1 replies
Which assistive devices have you found most helpful? Please share your experience with spinal muscular atrophy assistive devices...Reactions 0 reactions Comments3 repliesAssistive Equipment
Help us understand the impact of SMA [Update: Survey now closed!]About 1 in 6,000 to 10,000 babies worldwide are born with SMA. To better understand the patient experience and realities of spinal muscular atrophy, we are fielding our first In...Reactions 0 reactions Comments0 replies
Welcome to the spinal muscular atrophy community!Welcome to our community! Please introduce yourself and tell us what has brought you here...Reactions 0 reactions Comments1 replies
