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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

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Common Myths & Misconceptions You've Faced

What are some common myths & misconceptions you've faced living with SMA?...

Preventing Pressure Injuries for wheelchair bound

Hi SMA community, I am a caregiver for my 70yr old father diagnosed with SMA 3. He is currently receiving Spinraza. Our biggest challenge in keeping him healthy is preventing...

SMA Specialist Discussion Board: What Do You Look For?

Feel free to share your experience with SMA specialists, and what you look for when searching for the right doctor. ...

Managing Depression

I want to understand how personal with SMA cope with mental depression when you lose the ability to do certain things which you were able to do previously? for example...

Commode accessories

Since I have sma I cannot sit down and get up on any chair that is lower than 24 inches. I have a query with respect to using public commode...

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Treatment Journey Update

Where are you on your treatment journey? Have you begun treatment or are you weighing your options? Do you have experience switching or stopping treatment? If you stopped, why did...

Support Animals

Do you have a support animal? Tell us about it, and we'd LOVE to see a picture!...

How do you advocate for spinal muscular atrophy/disability rights

Please tell us what issues you advocate for and how....

Have you ever attended an abilities exposition?

If so, did you buy or find any useful products? Do you have anything else to share about the expo?...

Warm Weather Essentials

Summer is here! What things do you keep with you on a day to day basis to ensure that you can tolerate the heat? Any accessibility tools that are your...

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