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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

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Staying Positive with SMA

Do you have a special way to keep positive despite the challenges of SMA? What works for you? Join the conversation below....

Standing my ground

Hello everyone! I recently wrote an article that I'm waiting to get published all about standing my ground. I've gotten better at boundaries (even though I feel the guilt sometimes...

Self Care Routine

Some days it can be really hard to take care of yourself, but on the easier days you might find yourself having a routine you like to stick to. What's...

Mental Health Awareness Month: Guilt

Do you ever feel guilt about someone having to take care of you or being your caregiver? Tell us more about your experiences here....

Mental Health Check

May is mental health awareness month, a time to increase awareness of the importance of mental health and wellness. How are you doing lately? How would you rate your mental...

Do you know a solution for those health issues?

Hey there, life with SMA has never been easy, but since 2 years I´m having severe problems and need your advice... It all started with my first Covid Vaccination (Astra...

May is Mental Health Awareness Month!

It's ok to not be ok. It's valid to feel all the highs and lows that life hands you, especially when living with a rare disease. How has your mental...

Barriers with SMA

What do you feel are your greatest barriers living with SMA? How do you navigate these barriers? Start the conversation and let our community member join in....

Mental Health Month

May is Mental Health Month. Do you feel that spinal muscular atrophy has an affect on your mental health? Share your experience with managing mental health with our spinal muscular...

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