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Forums

Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

Have you encountered challenges with your SMA treatment?

Whether it be side effects, financial, insurance denials, or complications, please share with us. We'd love to hear a bit about your treatment journey....

Daily Routines

What is your daily routine? Have you found that a routine helps you manage your SMA? Share below....

Self Advocacy

Do you consider yourself an advocate for yourself? If so, how did you start advocating? How has it impacted your life with SMA?...

Independence & SMA

What would complete and total independence look like for you? How would you describe it? Do you have small every day wins that help you feel independent? Join the conversation....

Do you have experience wearing adaptive clothing?

Have you maybe participated in an adaptive clothing fashion show? Do you have any favorite brands? Share them with our community!...

How to get up from ground after falling?

Ever since I lost my ability to get up from the floor unassisted I am always really cautious while going outside and roaming about because if I fall down I...

A Question For The Community: Comfortable Bed Cushions

"My wife has SMA and we are spending a fortune trying to find the right cushion for her to be able to sit. She started getting bedsores about a year...

Advice for Your Younger Self

In various aspects of life, such as your health journey, relationships, or other personal matters, we often realize that hindsight is 20/20. If given the chance, what is the one...

Commode accessories

Since I have sma I cannot sit down and get up on any chair that is lower than 24 inches. I have a query with respect to using public commode...

Warm Weather Essentials

Summer is here! What things do you keep with you on a day to day basis to ensure that you can tolerate the heat? Any accessibility tools that are your...

Categories

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