Daily RoutinesWhat is your daily routine? Have you found that a routine helps you manage your SMA? Share below....Reactions0reactionsComments1 repliesTips & Advice
Self AdvocacyDo you consider yourself an advocate for yourself? If so, how did you start advocating? How has it impacted your life with SMA?...Reactions0reactionsComments1 repliesTips & Advice
Independence & SMAWhat would complete and total independence look like for you? How would you describe it? Do you have small every day wins that help you feel independent? Join the conversation....Reactions0reactionsComments3 repliesTips & Advice
Do you have experience wearing adaptive clothing?Have you maybe participated in an adaptive clothing fashion show? Do you have any favorite brands? Share them with our community!...Reactions0reactionsComments6 repliesTips & Advice
How to get up from ground after falling?Ever since I lost my ability to get up from the floor unassisted I am always really cautious while going outside and roaming about because if I fall down I...Reactions0reactionsComments3 repliesAssistive EquipmentTips & AdviceTravel
A Question For The Community: Comfortable Bed Cushions "My wife has SMA and we are spending a fortune trying to find the right cushion for her to be able to sit. She started getting bedsores about a year...Reactions0reactionsComments3 repliesTips & AdviceAssistive Equipment
Advice for Your Younger SelfIn various aspects of life, such as your health journey, relationships, or other personal matters, we often realize that hindsight is 20/20. If given the chance, what is the one...Reactions0reactionsComments3 repliesTips & Advice
Commode accessoriesSince I have sma I cannot sit down and get up on any chair that is lower than 24 inches. I have a query with respect to using public commode...Reactions0reactionsComments11 repliesAssistive EquipmentTravelTips & Advice
Warm Weather EssentialsSummer is here! What things do you keep with you on a day to day basis to ensure that you can tolerate the heat? Any accessibility tools that are your...Reactions0reactionsComments2 repliesTips & Advice
What's in your winter essentials tool kit?Have you found a product(s) that helps keep you extra warm during the winter months? Share with our community!...Reactions0reactionsComments4 repliesTips & Advice