Support AnimalDo you have a support animal/pet? What do you love about them? Would you recommend a support animal for other SMA patients?...Reactions 0 reactions Comments0 repliesTips & Advice
Self AdvocacyDo you consider yourself an advocate for yourself? If so, how did you start advocating? How has it impacted your life with SMA?...Reactions 0 reactions Comments0 repliesTips & Advice
Tips for Cold/Flu SeasonGetting sick is no fun! What're some tips and tricks you have to survive cold and flu season?...Reactions 0 reactions Comments4 repliesTips & Advice
Independence & SMAIf you could define what independence could look like for you and life with spinal muscular atrophy, what would it look like? How would you describe it? What are doing...Reactions 0 reactions Comments1 repliesTips & Advice
Commode accessoriesSince I have sma I cannot sit down and get up on any chair that is lower than 24 inches. I have a query with respect to using public commode...Reactions 0 reactions Comments10 repliesAssistive EquipmentTravelTips & Advice
What's in your winter essentials tool kit?Have you found a product(s) that helps keep you extra warm during the winter months? Share with our community!...Reactions 0 reactions Comments1 repliesTips & Advice
ABLE Savings AccountsDo you know what an ABLE account is? Do you have experiencing opening one/contributing to one for your own expenses of living with a disability? Share with our SMA community!...Reactions 0 reactions Comments0 repliesTips & Advice
How to get up from ground after falling?Ever since I lost my ability to get up from the floor unassisted I am always really cautious while going outside and roaming about because if I fall down I...Reactions 0 reactions Comments2 repliesAssistive EquipmentTips & AdviceTravel
How do you manage your energy with SMA?What tips do you have that have helped you manage and conserve your energy while living with SMA?...Reactions 0 reactions Comments1 repliesTips & Advice
Have you experienced thoughtless comments recently?One of our patient leaders, Mike, shared in a recent article that he's heard thoughtless comments from folks about being in wheelchair. These comments really strike him the wrong way...Reactions 0 reactions Comments0 repliesTips & AdviceStigma