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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

Can I be

I was hurt on the job in 2018 I was hit in the head by a 250lb beem and after 6 surgerys im left prelized on my left side and...

Standing my ground

Hello everyone! I recently wrote an article that I'm waiting to get published all about standing my ground. I've gotten better at boundaries (even though I feel the guilt sometimes...

What's in your winter essentials tool kit?

Have you found a product(s) that helps keep you extra warm during the winter months? Share with our community!...

Severe neck weakness

I'm 39 years old and live in Portugal. Was diagnosed with SMA type2 in London (Hammersmith Hospital) around my early teenager years, and at the age of 18 I had...

How do you manage your energy with SMA?

What tips do you have that have helped you manage and conserve your energy while living with SMA?...

Acts of Kindness

Have you experienced radical kindness or inclusivity recently? Let's share positive stories with our community!...

Support Animal

Do you have a support animal/pet? What do you love about them? Would you recommend a support animal for other SMA patients?...

Featured

Dating with SMA

What has your experience been like while dating with SMA? Do you tend to date others with SMA or have you been in an inter-abled relationship before? What are some...

How do you combat feeling low? What lifts you back up on those hard days? -Jennifer Moderator

Self Care Routine

Some days it can be really hard to take care of yourself, but on the easier days you might find yourself having a routine you like to stick to. What's...

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