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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

Self Care Routine

Some days it can be really hard to take care of yourself, but on the easier days you might find yourself having a routine you like to stick to. What's...

Mental Health Awareness Month: Guilt

Do you ever feel guilt about someone having to take care of you or being your caregiver? Tell us more about your experiences here....

Young Adults With SMA: How do you balance the need for independence with the need for care?

What are your tips for the transition from childhood/teen years to adulthood with SMA?...

Mental Health Check

May is mental health awareness month, a time to increase awareness of the importance of mental health and wellness. How are you doing lately? How would you rate your mental...

Holidays with SMA

Are there any special accommodations you and you family/friends have adopted to make special occasions easier? We'd love to hear about how you celebrate the holidays! Share with us below....

Featured

Tips for Cold/Flu Season

Getting sick is no fun! What're some tips and tricks you have to survive cold and flu season?...

Will you take our In America survey and help others understand the true impact of SMA?

The In America survey is now closed. To better understand the patient experience and realities of SMA, we are fielding our SMA In America survey. By taking this anonymous survey...

Diagnosis Discussion Board

When were you, or your loved one diagnosed with spinal muscular atrophy? What was the treatment journey like? Were doctors skeptical of another disease, or did they know it was...

Adaptive Sports & Hobbies

What are some of your favorite adaptive sports or hobbies? How have you really made them something you love and enjoy? Share with our community....

Finding Kindness

Do you find that others are easily willing to help you after they notice that you're in a wheelchair? If you've experienced the opposite, how have you handled situations where...

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