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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

Severe neck weakness

I'm 39 years old and live in Portugal. Was diagnosed with SMA type2 in London (Hammersmith Hospital) around my early teenager years, and at the age of 18 I had...

How do you manage your energy with SMA?

What tips do you have that have helped you manage and conserve your energy while living with SMA?...

Acts of Kindness

Have you experienced radical kindness or inclusivity recently? Let's share positive stories with our community!...

Support Animal

Do you have a support animal/pet? What do you love about them? Would you recommend a support animal for other SMA patients?...

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Dating with SMA

What has your experience been like while dating with SMA? Do you tend to date others with SMA or have you been in an inter-abled relationship before? What are some...

How do you combat feeling low? What lifts you back up on those hard days? -Jennifer Moderator

Self Care Routine

Some days it can be really hard to take care of yourself, but on the easier days you might find yourself having a routine you like to stick to. What's...

Mental Health Awareness Month: Guilt

Do you ever feel guilt about someone having to take care of you or being your caregiver? Tell us more about your experiences here....

Young Adults With SMA: How do you balance the need for independence with the need for care?

What are your tips for the transition from childhood/teen years to adulthood with SMA?...

Mental Health Check

May is mental health awareness month, a time to increase awareness of the importance of mental health and wellness. How are you doing lately? How would you rate your mental...

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