Mental Health Awareness Month: GuiltDo you ever feel guilt about someone having to take care of you or being your caregiver? Tell us more about your experiences here....Reactions0reactionsComments1 repliesMental Health
Young Adults With SMA: How do you balance the need for independence with the need for care?What are your tips for the transition from childhood/teen years to adulthood with SMA?...Reactions0reactionsComments0 repliesTips & Advice
Mental Health CheckMay is mental health awareness month, a time to increase awareness of the importance of mental health and wellness. How are you doing lately? How would you rate your mental...Reactions0reactionsComments0 repliesMental Health
Holidays with SMAAre there any special accommodations you and you family/friends have adopted to make special occasions easier? We'd love to hear about how you celebrate the holidays! Share with us below....Reactions0reactionsComments1 replies
FeaturedTips for Cold/Flu SeasonGetting sick is no fun! What're some tips and tricks you have to survive cold and flu season?...Reactions0reactionsComments4 repliesTips & Advice
Will you take our In America survey and help others understand the true impact of SMA?The In America survey is now closed. To better understand the patient experience and realities of SMA, we are fielding our SMA In America survey. By taking this anonymous survey...Reactions0reactionsComments0 repliesAwareness
Diagnosis Discussion BoardWhen were you, or your loved one diagnosed with spinal muscular atrophy? What was the treatment journey like? Were doctors skeptical of another disease, or did they know it was...Reactions0reactionsComments0 replies
Adaptive Sports & HobbiesWhat are some of your favorite adaptive sports or hobbies? How have you really made them something you love and enjoy? Share with our community....Reactions0reactionsComments0 replies
Finding Kindness Do you find that others are easily willing to help you after they notice that you're in a wheelchair? If you've experienced the opposite, how have you handled situations where...Reactions0reactionsComments0 repliesAwareness
How do you find balance?When you're ill for a long time and can't stick to the things you love doing, how do you manage your mental health? Do you find it difficult to balance...Reactions0reactionsComments1 replies