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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

Traveling with spinal muscular atrophy

Have you traveled before with SMA? What has your experience been like? Do you have tips for someone who is curious to travel / travel more often? If not, why...

Mental Health Month

May is Mental Health Month. Do you feel that spinal muscular atrophy has an affect on your mental health? Share your experience with managing mental health with our spinal muscular...

Advice: Younger patients with SMA

What advice would you tell your younger self? Are there things you wish someone would've told you?...

Help us understand the impact of SMA [Update: Survey now closed!]

About 1 in 6,000 to 10,000 babies worldwide are born with SMA. To better understand the patient experience and realities of spinal muscular atrophy, we are fielding our first In...

SMA Treatment

What has been your experience with SMA treatment? Share below....

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