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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

A Misconception I've Faced Living with SMA Is __________

What misconceptions have people expressed to you about living with SMA? How did you approach them / prove them wrong? Join the conversation below....

Diet and Nutrition

Hello everyone, I need advice. I'm really struggling to figure out food. I don't see any recipes I like online that are soft for me and/or healthy. I want to...

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A Letter to Your Younger Self

What's one thing you would tell your younger self with SMA? Comment below and start the discussion....

Is this SMA?

Besides having severe multilevel spinal stenosis, my MRI says There is a left paraspinal muscular atrophy. Multilevel degenerative changes with multilevel disc desiccation is seen. Is this SMA? Thanks! Alan...

Making Dreams A Reality

How has SMA affected your biggest, wildest dreams? Were you still able to make that dream a reality or did you have to adapt/change your expectations? Start the conversation here....

SMA Awareness Month Discussion Board: What do you wish others knew about SMA?

If there was one thing you could tell the world about SMA, what would it be?...

Resources for Assistance

What non-profit organizations have you found helpful? What services do they provide (financial, caregiving, other supportive services)?...

Barriers with SMA

What do you feel are your greatest barriers living with SMA? How do you navigate these barriers? Start the conversation and let our community member join in....

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Teaching Children About Disabilities Discussion Board

When you were a child, was it difficult to interact with non-disabled children? Did your school help introduce them to your disability? Was that helpful? Read an article about navigating...

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Doctors won’t address my sma

So, I was reading my mri report and it says I have mild to moderate paraspinal musculature atrophy. You can clearly see atrophy in my right arm. After bringing it...

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