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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

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A Letter to Your Younger Self

What's one thing you would tell your younger self with SMA? Comment below and start the discussion....

Is this SMA?

Besides having severe multilevel spinal stenosis, my MRI says There is a left paraspinal muscular atrophy. Multilevel degenerative changes with multilevel disc desiccation is seen. Is this SMA? Thanks! Alan...

Making Dreams A Reality

How has SMA affected your biggest, wildest dreams? Were you still able to make that dream a reality or did you have to adapt/change your expectations? Start the conversation here....

SMA Awareness Month Discussion Board: What do you wish others knew about SMA?

If there was one thing you could tell the world about SMA, what would it be?...

Resources for Assistance

What non-profit organizations have you found helpful? What services do they provide (financial, caregiving, other supportive services)?...

Barriers with SMA

What do you feel are your greatest barriers living with SMA? How do you navigate these barriers? Start the conversation and let our community member join in....

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Teaching Children About Disabilities Discussion Board

When you were a child, was it difficult to interact with non-disabled children? Did your school help introduce them to your disability? Was that helpful? Read an article about navigating...

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Doctors won’t address my sma

So, I was reading my mri report and it says I have mild to moderate paraspinal musculature atrophy. You can clearly see atrophy in my right arm. After bringing it...

Government Programs

What government programs do you use to help you manage your SMA? Please share your state or country. Are you happy with the programs? What would you like to see?...

Accessible Housing Tips

Have you made changes to make your house more accessible for someone with spinal muscular atrophy? If so, what changes have you made? Join the conversation....

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