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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

Some tips for using and purchasing assistive equipment are ___________.

Fill in the blank! What is your experience with purchasing assistive equipment? Do you have any fears about using them? Are there certain wheelchairs or assistive tools that have helped...

Welcomed Support for Caregivers

What kind of support do you find useful as the caregiver of someone with SMA? Who gives you that support and how do you ask for it?...

Your Heroes

Tell us about the person who has helped you the most as you've navigated living with SMA. Who has been your hero?...

Body Image

What concerns do you have about your body image or perception? Is your perception accurate or do you have an image of yourself from a younger time? How does disability...

Will you take our 2023 In America survey and help others understand the true impact of SMA?

To better understand the patient experience and realities of SMA, we are fielding our 2023 SMA In America survey. By taking this anonymous survey, you can help everyone better understand...

A Challenge I've Recently Overcome Is ______________

Fill in the blank. What is a challenge you've recently overcome while living with SMA? How would you encourage others who are currently facing challenges?...

A Misconception I've Faced Living with SMA Is __________

What misconceptions have people expressed to you about living with SMA? How did you approach them / prove them wrong? Join the conversation below....

Featured

A Letter to Your Younger Self

What's one thing you would tell your younger self with SMA? Comment below and start the discussion....

Making Dreams A Reality

How has SMA affected your biggest, wildest dreams? Were you still able to make that dream a reality or did you have to adapt/change your expectations? Start the conversation here....

SMA Awareness Month Discussion Board: What do you wish others knew about SMA?

If there was one thing you could tell the world about SMA, what would it be?...

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