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SMA Awareness Month Discussion Board: What do you wish others knew about SMA?

If there was one thing you could tell the world about SMA, what would it be?

  1. I would tell them, we’re no different from them. Don’t pity us, assist us. We have very normal lives, many of us are married with children and jobs.

    1. I love this so much. "Don't pity us, assist us" is so so important to relay. Thank you for sharing. Best, Abby (Team Member).

    2. @CommunityMember89, Kudos to you for your comment on "Don't pity us, assist us. Best, Marc M., spinalmuscularatrophy.net, Advocate

  2. That with the right Equipment and Help you are able to do some things and be more Independent with Assistive technology than a lot of people think that you can. And you are people like everyone else and like same things that they do and can make Jokes like they do and have Fun that way.

    1. Absolutely! This is so important to share with the world. Thank you for sharing this. Best, Abby (Team Member).

  3. No problem and thanks for everything you are doing and I am just letting people know what it is like for me.

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