I would tell them, we’re no different from them. Don’t pity us, assist us. We have very normal lives, many of us are married with children and jobs.
abby-schmidt Community Admin
I love this so much. "Don't pity us, assist us" is so so important to relay. Thank you for sharing. Best, Abby (Team Member).
Marc Mitnick Moderator
@CommunityMember89, Kudos to you for your comment on "Don't pity us, assist us. Best, Marc M., spinalmuscularatrophy.net, Advocate
Pagz Member
That with the right Equipment and Help you are able to do some things and be more Independent with Assistive technology than a lot of people think that you can. And you are people like everyone else and like same things that they do and can make Jokes like they do and have Fun that way.
abby-schmidt Community Admin
Absolutely! This is so important to share with the world. Thank you for sharing this. Best, Abby (Team Member).
Pagz Member
No problem and thanks for everything you are doing and I am just letting people know what it is like for me.