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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

Awareness Month 2023 Spotlight: Your SMA Story

What brings you to our community? Do you identify has a caregiver, patient, or health care provider? Use this forum space to...

Have you experienced thoughtless comments recently?

One of our patient leaders, Mike, shared in a recent article that he's heard thoughtless comments from folks about being in wheelchair...

Awareness Month 2023

If there was one thing you'd tell someone about SMA, what would it be? Do you wish there was more awareness around...

Tips on Speaking Up!

How do you speak up for yourself? Do you rely on others to help you? Share some tips for others living with...

Accessibility Issues

Have you run into recent accessibility issues lately? Maybe trying to get into a store that didn't have a ramp for your...

Working with Nonprofits

Do you have experience working with nonprofits? Have you been able to receive funding through them for assistive technology or something else?...

Are You in an Interabled Relationship?

What is your experience like being in an interabled relationship? If you need inspiration, read Suzanne's perspective: https://spinalmuscularatrophy.net/living/interabled-relationships Share below!...

Accessibility Challenges

Have you faced accessibility challenges lately? Maybe when trying to go out and do something social? We want to hear your stories...

May is Mental Health Awareness Month!

It's ok to not be ok. It's valid to feel all the highs and lows that life hands you, especially when living...

Self pleasure tips

Hello. Please delete if this isn't appropriate, but I was just curious what y'all do to help yourself when you're in the...

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