Forums

Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

Active today

regarding physiotherapy

My son who is 11 years old, has SMA type 3 and is currently using wheelchair. What help does physiotherapy and magnetic...

Active today

Some tips for using and purchasing assistive equipment are ___________.

Fill in the blank! What is your experience with purchasing assistive equipment? Do you have any fears about using them? Are there...

Are You in an Interabled Relationship?

What is your experience like being in an interabled relationship? If you need inspiration, read Suzanne's perspective: https://spinalmuscularatrophy.net/living/interabled-relationships Share below!...

Full Time Job and Paying for Caregivers

Hoping to start working soon as a student (so part time). Worried I’ll lose Medicaid though. I live in Virginia and I...

SMA Logistics around dating

I’m in India which means I live with poor healthcare and accessibility. I was diagnosed with type 2 SMA 22 years ago...

You are more than someone with SMA. Who are you?

SMA is an all-consuming condition and affects so much of our lives. Other than SMA, how do you describe yourself? What is...

Welcome to the spinal muscular atrophy community!

Welcome to our community! Please introduce yourself and tell us what has brought you here....

My Chart & other electronic communications

How do you feel about communicating with your doctor with MyChart or similar computer-based platforms? Does it make things easier on you...

How do you find balance?

When you're ill for a long time and can't stick to the things you love doing, how do you manage your mental...

Severe neck weakness

I'm 39 years old and live in Portugal. Was diagnosed with SMA type2 in London (Hammersmith Hospital) around my early teenager years...

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