Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Tell us about your symptom and treatment experience. Take our survey here.

Forums

Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

Government Programs

What government programs do you use to help you manage your SMA? Please share your state or country. Are you happy with the programs? What would you like to see?...

Accessible Housing Tips

Have you made changes to make your house more accessible for someone with spinal muscular atrophy? If so, what changes have you made? Join the conversation....

Accessible Summer Fun

Share your tips for accessible summer activities for kids OR adults. What do you do to enjoy the 'good old summertime?'...

Recently Diagnosed Discussion Board

Recently diagnosed? Questions about treatment? Accessibility? Ask your questions here and our patient leaders will respond with their experiences....

Resources

What resources are you aware of that could help people with spinal muscular atrophy? Websites? Organizations? Books? Feel free to share here!...

Caregiving

Are you a caregiver for someone with spinal muscular atrophy? Share your story and experiences here. ...

Traveling with spinal muscular atrophy

Have you traveled before with SMA? What has your experience been like? Do you have tips for someone who is curious to travel / travel more often? If not, why...

Mental Health Month

May is Mental Health Month. Do you feel that spinal muscular atrophy has an affect on your mental health? Share your experience with managing mental health with our spinal muscular...

Advice: Younger patients with SMA

What advice would you tell your younger self? Are there things you wish someone would've told you?...

Switching from Spinraza to Risdiplam

Hi, Apologies if this has been discussed.. new to forum. I have 2 children with SMA 3, age 13 and 11. They have been on Spinraza for 2 years. Considering...

Categories

Select a category to find topics that interest you.