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Read conversations, start a discussion, and connect with others about spinal muscular atrophy.

SMA Awareness Month Discussion Board: What do you wish others knew about SMA?

If there was one thing you could tell the world about SMA, what would it be?...

Resources for Assistance

What non-profit organizations have you found helpful? What services do they provide (financial, caregiving, other supportive services)?...

Barriers with SMA

What do you feel are your greatest barriers living with SMA? How do you navigate these barriers? Start the conversation and let our community member join in....

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Teaching Children About Disabilities Discussion Board

When you were a child, was it difficult to interact with non-disabled children? Did your school help introduce them to your disability? Was that helpful? Read an article about navigating...

Government Programs

What government programs do you use to help you manage your SMA? Please share your state or country. Are you happy with the programs? What would you like to see?...

Accessible Housing Tips

Have you made changes to make your house more accessible for someone with spinal muscular atrophy? If so, what changes have you made? Join the conversation....

Accessible Summer Fun

Share your tips for accessible summer activities for kids OR adults. What do you do to enjoy the 'good old summertime?'...

Recently Diagnosed Discussion Board

Recently diagnosed? Questions about treatment? Accessibility? Ask your questions here and our patient leaders will respond with their experiences....

Resources

What resources are you aware of that could help people with spinal muscular atrophy? Websites? Organizations? Books? Feel free to share here!...

Caregiving

Are you a caregiver for someone with spinal muscular atrophy? Share your story and experiences here. ...

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