Common Myths & Misconceptions You've Faced
What are some common myths & misconceptions you've faced living with SMA?
A lot of people look at me and see my disability and wheelchair and assume I can’t speak for myself or that I can’t make decisions for myself. It’s frustrating being out to dinner as a almost thirty year old woman and the waiters all ask my parents what I would like to eat.
I still face that situation. Once this woman offered to be my PCA, and spoke to my husband. Mind blown! She's trained and behaves like that, ahh no thanks It’s the worst when someone thinks they have to talk above you instead of to you. I get that alot in restaurants and even in some doctors offices. And I’ve started to just straight out reply, “you can speak to me, please.” -Jennifer (Moderator)
