Sorry To Miss The CureSMA ConferenceI really wanted to go to The CureSMA Conference this year! I have no idea why Mike didn’t sign us up. I’m still so mad at him! Why on earth...reactions3comments
Radical InclusivityDefinition of Inclusion: 1. The action or state of including or of being included within a group or structure. 2. The practice or policy of providing equal access to opportunities...reactions1comment
Power of the ChairWhen people see another person in a wheelchair, a subtle transformation occurs, and they do their best to act with kindness. Often strangers extend their hands to hold open doors...reactions1comment
Challenges of Being Your Partner's Full-time CaregiverCaring for a loved one with a disability like spinal muscular atrophy can be both a rewarding and challenging experience. One of the primary challenges of being a full-time caregiver...reactions1comment
Interabled Relationships are Just Like Any Other RelationshipLove knows no boundaries, and when it comes to interabled relationships, it is no different. Mike and I are in an interabled relationship. Basically meaning that Mike is disabled and...reactionscomments
Maintaining Relationships with Family and FriendsCaretaking for a loved one is a full-time gig. I purposely used the word gig instead of job. I really love what I do. I get paid to be with Mike...reactions1comment
Caring For A Loved OneBeing paid to take care of someone is a thought that never crossed my mind. Growing up in a large family and being the oldest of 5 kind of made...reactionscomments
How I Find Worth in CaretakingTaking care of someone can be hard and trying. Especially when it is a 24/7 gig. There are days I wish I could get a break. As of right now...reactionscomments
Escaping the Cold WintersMike and I are thinking about embarking on another road trip soon. These Pennsylvania winters are so hard on Mike in his condition with spinal muscular atrophy. When it’s cold...reactionscomments
Making Sacrifices or Accommodating Each OtherRelationships are all about give and take. We wear so many different relationship hats in our life. Child and parent, sibling, friend, mate and co-worker to name a few. When...reactionscomments
Traveling and SMATraveling has always been a passion of mine. When I was younger I was fortunate enough to travel to Costa Rica, Guatemala, Mexico, Cuba, Brazil, India, Vietnam, Malaysia, China, Japan...reactionscomments
Taking Care of Myself as Mike’s Full-Time CaregiverIn March 2020 I became Mike’s full-time caregiver. This was a big decision and one we discussed for a long time. It was the beginning of the pandemic and Mike’s...reactionscomments
Becoming My Boyfriend’s Full Time Caretaker I am the oldest of 5. I had one sister and 3 brothers. Growing up in my family I was always by my mom’s side. Being the oldest meant I was...reactionscomments
Van-Accessible ParkingMike usually doesn’t like to use disabled parking spaces. There are different types of disabled parking spaces: regular and van-accessible. I’ve learned being with Mike that you really shouldn’t use...reactions3comments
How I Met MikeOne of the great things about little kids is that they have no filter. For example, when adults see someone with a physical disability, they usually politely avert their eyes...reactions1comment
