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Erin Courteau

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By Editorial Team

1 min read

Spinal Muscular Atrophy Community Advocate Erin Courteau Erin was previously a health leader on SpinalMuscularAtrophy.net.

Erin Courteau is mother to a 4-year-old with type-1 spinal muscular atrophy. Her daughter was diagnosed in October 2017 when she was 8 months old. Consequently, Erin left her career in hospitality and became a full-time caregiver. This new role quickly led to a path of advocacy; she is a chapter leader for the local Cure SMA chapter and is passionate about helping other families as they navigate diagnosis for their children.

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Erin and her family live in the Seattle area, which is good because one of her favorite things is a rainy day. She enjoys reading, designing her garden – she comes home with new plants nearly every week –and eating the delicious meals her husband prepares for the family. With her own mother’s guidance and training, Erin has begun a new career as Residential Appraiser.

She looks forward to sharing her stories about balancing all her roles and adventures, hopefully with grace, often humor, sometimes impatience, and always a cluster of emotions.

Click here to read all of Erin's articles on SpinalMuscularAtrophy.net.