Samantha Lackey

Spinal Muscular Atrophy Community Advocate Samantha LackeySamantha is a first-time mom to Stella, who has spinal muscular atrophy (SMA) type 1. She is an advocate for newborn screening and everyday inclusion. Samantha enjoys spending time with her family and enjoying the sunshine in sunny Phoenix, Arizona.

Click here to read all of Samantha's articles on

By providing your email address, you are agreeing to our privacy policy. We never sell or share your email address.