The College YearsThe time came to visit some college campuses. Mike really wanted to go to school in Florida, but the realization of his progressive disability caused him to look closer to...Reactions0reactionsComments0 comments
Introduction to MDAAfter waiting months for the results of all those tests completed at St. Christopher’s Hospital, we went back to see the neurologist and were given a diagnosis of Friedreich's ataxia...Reactions0reactionsComments1 comments
Things We Learned as ParentsMike’s brother, Dan, was a competitive runner since fourth grade and he was Dan’s biggest fan and supporter. By high school, Mike joined the track team as their manager. The...Reactions0reactionsComments1 comments
Dealing with Challenges at SchoolIn the summer of 1988, we moved our family to a new home. Mike was starting 6th grade, our son Daniel started 4th, and Allison entered 1st grade. This was...Reactions0reactionsComments1 comments
Hope is The WordReliving our family stories brings back many memories of my son's journey with SMA. The emotions felt were painful, inspirational, scary, hurtful, and mostly sadness. Over the years people (mostly...Reactions0reactionsComments2 comments
Remembering the First DaysAs you move along in your life’s journey, the memory of life-altering events comes back in detail. We remember that wedding day and the birth of each of our children...Reactions0reactionsComments1 comments
The Journey BeginsI am the parent of a wonderful son who lives with SMA. What I’ve learned is that when you have a loved one diagnosed with a disease, it affects the...Reactions0reactionsComments0 comments
