Allie Williams

Spinal Muscular Atrophy Community Advocate Allie Williams Allie Williams is a 40-year-old woman with spinal muscular atrophy type 2. She was diagnosed at age 18 months and her parents were told a short life was predicted. Allie, never one to allow other people to direct her life’s ambition, instead has gone on to have an independent and fruitful life. She completed one of her major life goals by acquiring an Associate of Art degree when she was 21 from Rogers State University in Claremore, OK. She then moved to Colorado and completed another life goal in getting married. Unfortunately, that marriage was dissolved and she moved back to Oklahoma where she continued her education at age 35 and completed her BA in Music with the Greenwood School of Music at Oklahoma State University in 2020. Her hobbies include music, gaming and making art. Allie is a Habitat for Humanity homeowner and was proud to work toward building her own home, the first fully wheelchair accessible home in Stillwater, Oklahoma. Allie currently spends time teaching vocal lessons online and enjoys advocating for the disabled. Her motto is “Representation Matters”, and she tries to be this example every day.

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