Allie Williams

Guess what I did? I took a trip to Washington, D.C., to advocate for a cure for spinal muscular atrophy (SMA) on Capital Hill. It was an incredible journey, but...

Living with spinal muscular atrophy (SMA) feels like riding a rollercoaster of emotions, but having my lifeline, also known as my personal care assistant (PCA), adds some much-needed comedy and...

Maintaining a reliable vehicle is vital for individuals living with spinal muscular atrophy (SMA) to maintain their independence and overall well-being. Unfortunately, vehicle repairs can often be a financial burden...

In the vast and colorful world of dog adoption, there are countless tales of furry companions who found their forever homes. These stories often involve the rescue of dogs from...

When living with spinal muscular atrophy, there are moments when you're getting some help dressing or with personal care, and something hilariously awkward happens. For instance, that time when my...

In the 1990s, I found myself unwittingly becoming a pioneer in the quest for advancements in SMA care. As a person living with spinal muscular atrophy (SMA), the landscape of...

Well, folks! It's been a wild ride – a decade of liberation from marriage and an interesting tango with spinal muscular atrophy (SMA). Who needs a partner when you can...

Many people with disabilities, like spinal muscular atrophy, may struggle with self-care necessities, especially bathing/showering when access is hard. My situation was no different, and I want to describe the...

Getting ready in the morning when you have spinal muscular atrophy (SMA) can be challenging because of the lack of strength and inability to move much, but with a little...

I have spinal muscular atrophy (SMA), a condition that affects my muscles and mobility. But the amazing part is that I went to a regular school for first grade way...

As someone living with spinal muscular atrophy (SMA), I know firsthand the challenges and triumphs that come with this condition. That's why I'm writing to emphasize the importance of early...

Home delivery of groceries and online shopping became a normal occurrence for many people during the COVID-19 pandemic. As someone with mobility issues because of my spinal muscular atrophy, my...

This is how true crime podcasts start:  As someone who travels with my power wheelchair and who cannot transfer easily for trips, I always plan far in advance for wheelchair...

Living with a chronic condition like spinal muscular atrophy (SMA) can have significant social and emotional impacts on individuals and their families. The challenges presented by SMA, particularly in its...

My SMA community was struck hard this winter season by a string of deaths. Blow by blow it broke me. My friend Kim was the worst blow by far. I...

I often get told how I should be grateful because the government pays for my spinal muscular atrophy treatments, or my durable medical equipment and I shouldn’t want for more...

I have gastroparesis, along with spinal muscular atrophy. I was diagnosed with it last year after almost a lifetime of stomach and GI issues. With the diagnosis came orders of...

This year's theme for SMA Month was SMA does not define us. For Allie Williams, a patient leader for SpinalMuscularAtrophy.net, her life as a musician is one way she defines...

Content Note:This article describes the author's personal experience with pregnancy loss. I was 2 weeks late... I was never late. My heart soared... I was elated when I took the...

My friends call me "Mary Poppins" because my backpack is full and has everything you could ever need in it. Like many other wheelchair users with spinal muscular atrophy, backpacks...