Choosing Care Over CareerIn the United States, there are harsh limits placed on disabled people. Limits on how much money they can make, how much...reactions1comment
Dealing with Challenges at SchoolIn the summer of 1988, we moved our family to a new home. Mike was starting 6th grade, our son Daniel started...reactions1comment
Dealing With GuiltGuilt can be rough to deal with. Everyone deals with guilt on some level. I’m sure my parents and siblings have dealt...reactionscomments
Patient Assistance Programs for SMAAffording your spinal muscular atrophy (SMA) drugs and other treatment costs can be challenging. Luckily, there are programs that may be able...reactionscomments
Living Life in a WheelchairLiving life in a wheelchair, you often encounter and have to react to two different situations that sound the same: stairs and...reactionscomments
Shaving With a G-Tube and Keeping My Stoma CleanPreviously, I wrote an article about my love/hate relationship with my g-tube (Steve Stoma). One of the main reasons why it felt...reactions1comment
Eating with SMASitting down and sharing a meal with family and friends is one of the most basic social things to do. I love...reactions1comment
The Importance of ImprovisationMobility aids help many of us with SMA live as independently as possible. We use wheelchairs so we can get around as...reactions1comment
Van-Accessible ParkingMike usually doesn’t like to use disabled parking spaces. There are different types of disabled parking spaces: regular and van-accessible. I’ve learned...reactions3comments
Patient LiftsHaving the inability to raise oneself out of a power chair to go to the bathroom or to the bed can be...reactionscomments
Subscribe to Our Weekly NewslettersDo you want more information about spinal muscular atrophy? Are you looking for support? Do you want to talk to others affected...reactionscomments
Asking for Medical Accommodations at Your JobHaving SMA and asking for help is unfortunately just a part of our disability. Although this may be difficult at times, we...reactionscomments
A Walk With Someone NewYesterday, a friend invited me on a walk, because she is raising money by walking for a charity. We decided to walk...reactions1comment
The Dreaded "What-If's"I’m a 44-year-old man living with spinal muscular atrophy type 3. Looking back now, I was pretty independent as a kid all...reactionscomments
Interviewing for a Job When You Have a DisabilityInterviewing for a job can be a daunting task for anyone regardless of how physically or mentally capable you are. But when...reactions1comment
To Trach or Not to TrachThat is the question. Whether tis nobler... Despite that Shakespearean introduction, this is a serious topic that many of us will have...reactions1comment
The Frustration of "Inaccessible" Accessibility“Come visit this awesome new restaurant,” my friends begged me. “It’s got great Yelp reviews and we’ve wanted to visit it.” “This...reactions6comments
How I Met MikeOne of the great things about little kids is that they have no filter. For example, when adults see someone with a...reactions1comment
How Expensive Is That Minivan?I want to talk about the extra expenses for anyone who deals with a physical disability. Dealing with the physical aspects of...reactions4comments
Remembering the First DaysAs you move along in your life’s journey, the memory of life-altering events comes back in detail. We remember that wedding day...reactions1comment
