How My Elf On The Shelf Turned Into Something MoreMy daughter Stella is two and a half years old. Lately, Stella's development has revolved around exploration. Continuing to push her limits...reactions1comment
Top Tips for Hiring a PCALet’s begin with what a PCA is, and what a PCA is not. A personal care assistant should entail three things: Personal...reactionscomments
Managing CaregiversWhen I was of college age, I was fortunate enough to attend a school that at the time offered a dormitory providing...reactionscomments
The Freedom to SwimSometimes I just want to stand up and fling my arms around or jump or spin really fast until I’m dizzy and...reactions1comment
Office of Vocational Rehabilitation (OVR)I mentioned this program briefly before. This was extremely helpful to our situation when we first were introduced to it in 1995...reactionscomments
Frustrations Around Able-Bodied People Using the Accessible BathroomsIf you’re following along, this is Part 4 of my story. The first three articles are linked below: The event that prompted...reactionscomments
Fashion Within the Disability WorldThis is a topic that I think the world is expanding upon: fashion within the disability world. For a long time, I...reactions1comment
Giving Up DrivingI touched on this topic a little in my article “How Expensive Is That Minivan.” I drove without any driving adaptations for 24...reactionscomments
How To Be a Good FriendRecently I’ve read a few posts regarding being disabled and having friends. One was in a Muscular Dystrophy Facebook group where someone...reactionscomments
Preparing For the Working World With college behind him, it was now time for Mike to apply for that first job in the business world. I know...reactions1comment
Talking to Your Child About SMAWhen your child has a long-term illness like spinal muscular atrophy (SMA), it is normal for them to have questions. They may...reactionscomments
Designing New Locker RoomsThis is part 3 of an ongoing story. If you haven’t been following along you might want to start with Part 1...reactionscomments
Monitoring Calories and Protein ConsumptionAfter getting my g-tube placed in 2017, food became more of a luxury than a necessity for nutrition. While my feeding tube...reactionscomments
Building Design and Accessible BathroomsWe left off when I was joining the board of directors at my local YMCA. If you haven’t read part one of...reactionscomments
Running a Successful Business From Your PhoneHave you ever wondered, “Am I capable of being a business owner?” Living with SMA, we run into the constant challenges of...reactions1comment
Hiring the Right PCAI like to equate hiring a new caregiver to committing to a good relationship. It takes more time in the beginning, but...reactions1comment
Regrets From a Father: Real Life Personal SMA Family DynamicsI have regrets! Not with my daughter who had SMA and passed away at 17 years old, but for myself with regrets...survivor...reactionscomments
SMA Financial FrustrationsI stopped working back in 2008. I was working for a bank in a mortgage call center. Some of you younger readers...reactions1comment
Dealing with Challenges at SchoolIn the summer of 1988, we moved our family to a new home. Mike was starting 6th grade, our son Daniel started...reactions1comment
Choosing Care Over CareerIn the United States, there are harsh limits placed on disabled people. Limits on how much money they can make, how much...reactions1comment
