Living Life in a WheelchairLiving life in a wheelchair, you often encounter and have to react to two different situations that sound the same: stairs and...reactionscomments
Shaving With a G-Tube and Keeping My Stoma CleanPreviously, I wrote an article about my love/hate relationship with my g-tube (Steve Stoma). One of the main reasons why it felt...reactions1comment
Asking for Medical Accommodations at Your JobHaving SMA and asking for help is unfortunately just a part of our disability. Although this may be difficult at times, we...reactionscomments
To Trach or Not to TrachThat is the question. Whether tis nobler... Despite that Shakespearean introduction, this is a serious topic that many of us will have...reactions1comment
Subscribe to Our Weekly NewslettersDo you want more information about spinal muscular atrophy? Are you looking for support? Do you want to talk to others affected...reactionscomments
A Walk With Someone NewYesterday, a friend invited me on a walk, because she is raising money by walking for a charity. We decided to walk...reactions1comment
The Dreaded "What-If's"I’m a 44-year-old man living with spinal muscular atrophy type 3. Looking back now, I was pretty independent as a kid all...reactionscomments
How I Met MikeOne of the great things about little kids is that they have no filter. For example, when adults see someone with a...reactions1comment
Finding the Right CaregiversLiving with a disability, I like to consider a full-contact sport. It requires your mind, body, and soul to be as healthy...reactionscomments
