My Life with SMAIt all started here Mom was wondering why a bubbly little girl who can already speak at 10 months old cannot crawl...reactions1comment
Why I Love and Hate My G-Tube“Steve Stoma is the worst roommate.” Yes, I named my g-tube and that’s what I tell all doctors and people who have...reactionscomments
Talking to an Employer About SMATalking to an employer about spinal muscular atrophy (SMA) can be scary. But many people find that open communication with their employer...reactionscomments
The Journey BeginsI am the parent of a wonderful son who lives with SMA. What I’ve learned is that when you have a loved...reactionscomments
Coping With Your Child’s SMA DiagnosisA child’s diagnosis of spinal muscular atrophy (SMA) can be a life-changing event for parents. Parents say they feel a range of...reactions1comment
