Megan DeJarnett

I feel as though having a disability is a constant balancing act of freedom and cost. Owning an accessible van can be a ticket to freedom for many with mobility...

Life has its moments – some challenging, some joyful. As a full-time electric wheelchair user with limited arm mobility due to spinal muscular atrophy, I've experienced my fair share of...

Who would've known that a seemingly simple pair of utensils could carry such emotional weight? The other night, my sister invited us over to her house for dinner. This wasn't...

Growing up with spinal muscular atrophy (SMA), I've had the privilege of witnessing the remarkable impact of my parents' guidance in teaching me to be my own advocate. This journey...

From a very young age, I've been intimately familiar with the world of disabilities. Diagnosed with SMA type 2 at just 18 months, I entered the public school setting as...

Going out can be nerve-wracking for anyone, but when you're a wheelchair user with spinal muscular atrophy, the stress can multiply. From accessibility concerns to dealing with a crowd of...

I cannot believe it’s already that time of year. I’m getting the question, “What do you want for Christmas!?” I have found myself wanting to give practical yet creative ideas that...

We've all witnessed that mom clutching her child's hand like it's a lifeline as they navigate a chaotic parking lot. This could be an accident waiting to happen for anyone...

Financial planning can be a daunting task for anyone, but for individuals with disabilities, such as spinal muscular atrophy, and their families, it comes with an added layer of complexity...

The other day I was in my home observing the business. I had two caregivers shuffling through my bedroom and kitchen, kids running around and a spouse working. I simply...

As someone with spinal muscular atrophy, swimming has always held a special place in my heart. Ever since I was a child, being in an electric wheelchair, I was immensely...

Accessibility and independence go hand-in-hand but often times people do not realize that they rely on each other. I have spoken with many parents of children with disabilities like spinal...

Trying on clothes in a department store can be a daunting task for anyone, but it can be even more challenging if you use a wheelchair. As a woman with...

Living with spinal muscular atrophy, you'll often find yourself consulting a pulmonologist from a young age. Over the years, there have been significant advancements in pulmonology for this rare condition...

Being a mother is an adventure in itself, but when you add two young children and a wheelchair to the mix, things get even more interesting! As a mother, with...

As someone with spinal muscular atrophy, I understand the importance of selecting the correct wheelchair. Not only is it a huge financial commitment but is a piece of our body...

Like any other job in this world, being someone’s personal care assistant just isn’t for everyone. But unlike every other job, this position is very close to home. Both literally...

I can honestly say some of my funnier moments coping with spinal muscular atrophy have come from having to use public restrooms. However, it wasn’t until I got married that...

The time of year is upon us when the temps are dropping, the holidays are approaching and the terrifying “F” word is among us. I know that most parents do...

Since I was a little girl I dreamt of the day that I would “walk” down the aisle on my big day. I didn’t think about the logistics as a...