Health Literacy and SMAFor people with spinal muscular atrophy (SMA), health literacy is crucial. SMA is a genetic disorder that affects muscle strength and movement. Here is why health literacy matters, the impacts...reactionscomments
Taking Care of a Child With SMABy its very nature, caregiving can take an emotional and physical toll on your health. If your child has spinal muscular atrophy (SMA), you may feel added stress and worry...reactionscomments
Newborn Genetic Screening for Spinal Muscular AtrophySpinal muscular atrophy (SMA) is a rare genetic condition that causes muscle weakness. SMA is caused by a mistake in a specific gene. People with the faulty gene are not...reactionscomments
Comparing Spinraza and Evrysdi: Things to ConsiderIf you are taking Spinraza® (nusinersen) for spinal muscular atrophy (SMA), then you may be curious about Evrysdi® (risdiplam). Both therapies are available in the United States, but there are...reactionscomments
What Does It Mean to Be a Silent Carrier for SMA?Spinal muscular atrophy (SMA) is a rare genetic disorder passed from parents to their children. SMA affects the spinal nerves by causing them to waste away. This results in the...reactionscomments
Clinical Trial GlossaryClinical trials have a language of their own. It helps to understand the common terms used when describing a clinical trial before you sign up. Here are some of the...reactionscomments
Clinical Trial ParticipationClinical trials are medical studies that pose a question: Does a new treatment work better than older treatments? Each year, thousands of treatments are tested in controlled experiments called clinical...reactionscomments
Understanding Clinical TrialsA clinical trial is a type of research. Research is the process scientists use to explain how our bodies work or why our bodies stop working well. Clinical trials are...reactionscomments
