SMA Awareness Month 2022
August is Spinal Muscular Atrophy (SMA) Awareness Month! Receiving a diagnosis for spinal muscular atrophy can be a long, frustrating process, leading to many lifestyle changes. Once a person is diagnosed with spinal muscular atrophy, next steps include assembling a medical team, assessing treatment options, adapting everyday life to become more accessible, and more.
Here at SpinalMuscularAtrophy.net, we celebrate this Spinal Muscular Atrophy Awareness Month by bringing attention to the fact that SMA does not define someone or their caregiver team. Living with SMA does not mean that one is incapable of leading a normal life. Join us this month by sharing and being a part of a community of others who live with SMA.
Enter our giveaway!
From August 3 to August 31, we will be opening a community giveaway. One lucky winner will receive a wheelchair backpack. This pack easily attaches to any wheelchair and can hold everything you need for the day — and even keeps things cold! Stay tuned throughout the month for more details.
Share your story
One of the best ways we can spread awareness about SMA is by sharing our stories with each other. We want to hear from you so we can help others navigate the diagnosis and treatment process. What are your current challenges? What are your current joys? If you enter the giveaway, 1 story submission counts as 1 bonus entry.
Connect with us
Join us on Facebook
Throughout the month of August, we will be sharing prompts and facts about living with SMA, as well as inspiring quotes that Patient Leaders have shared with us. You can find us on Facebook and click "Like" at the top of the page to stay updated on all things SpinalMuscularAtrophy.net.
Become a member
In order to participate fully in all of the community activities this month, make sure you have set up an account and are signed up to be a member. It is free and easy!
Participate in the conversation
Forum thread: What do you wish others knew about SMA?
If there was one thing you could tell the world about SMA, what would it be? Join the conversation here.
Have you taken our SMA In America Survey yet?