A group of people, most in wheelchairs, are participating in their hobbies; "SMA Awareness Month 2022" is written in the middle

SMA Awareness Month 2022

Last updated: August 2022

August is Spinal Muscular Atrophy (SMA) Awareness Month! Receiving a diagnosis for spinal muscular atrophy can be a long, frustrating process, leading to many lifestyle changes. Once a person is diagnosed with spinal muscular atrophy, next steps include assembling a medical team, assessing treatment options, adapting everyday life to become more accessible, and more.

Here at SpinalMuscularAtrophy.net, we celebrate this Spinal Muscular Atrophy Awareness Month by bringing attention to the fact that SMA does not define someone or their caregiver team. Living with SMA does not mean that one is incapable of leading a normal life. Join us this month by sharing and being a part of a community of others who live with SMA.

Enter our giveaway!

From August 3 to August 31, we will be opening a community giveaway. One lucky winner will receive a wheelchair backpack. This pack easily attaches to any wheelchair and can hold everything you need for the day — and even keeps things cold! Stay tuned throughout the month for more details.

Share your story

One of the best ways we can spread awareness about SMA is by sharing our stories with each other. We want to hear from you so we can help others navigate the diagnosis and treatment process. What are your current challenges? What are your current joys? If you enter the giveaway, 1 story submission counts as 1 bonus entry.

Connect with us

Join us on Facebook

Throughout the month of August, we will be sharing prompts and facts about living with SMA, as well as inspiring quotes that Patient Leaders have shared with us. You can find us on Facebook and click "Like" at the top of the page to stay updated on all things SpinalMuscularAtrophy.net.

Become a member

In order to participate fully in all of the community activities this month, make sure you have set up an account and are signed up to be a member. It is free and easy!

Participate in the conversation

Forum thread: What do you wish others knew about SMA?

If there was one thing you could tell the world about SMA, what would it be? Join the conversation here.

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This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The SpinalMuscularAtrophy.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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Community Poll

Have you found something to help you mentally cope with SMA?